I signed up for pulmonary rehab not knowing there was not a trained pulmonary therapist working there for a few weeks, just a nurse and office worker.  After I found out I quit since I was paying for this partly from my medical.  What a waste for me and what really got to me was when I was on a treadmill I put it faster and the woman came up to me and lowered it saying she didn't want me to have heart trouble!  I'm in good health except for my lungs!  What a waste!  

I will be on a study soon which consists of walking exercise and hope I get on the part that makes you work out harder.  This will all be done thru the phone.

Cac,

1. Hello! I am sorry that you had a bad experience with rehab but glad that you knew enough to get out of there. Unfortunately, there are crooked people out there advertising services that don’t exist or unsuitable for the client.
2. I went to a pulmonary rehab program years ago with full staff -no one had any knowledge on BNTM.  A few staff members were not taking the initiative to do research on the topic. I was desperate to get stronger since I couldn’t walk more than one city block. I provided the organization with the educational resources I had at the time and we collaborated at a team.. It worked out over time and I was able to regain stamina. We have come along way over the past decade but still have a ways to go in terms of educating staff members on the needs of BNTM patients.
3. I hope that this study will provide you with the assistance you need. Please keep us posted on your progress. 

CJack,

Hello! I am so sorry to read about your pulmonary rehab experience at 3 different centers. I understand how frustrating this is since I was in your shoes in the past. I listed information of top rehab programs throughout the country in another post. Hopefully, you can contact a BNTM Care Center Network in your area to see if they can give you a referral to a quality Pulmonary Program in your area: https://social.bronchandntm.org/directory/find-a-bronchiectasis-and-ntm-center

I have also done rehab at 2 different place one at hospital and one at a physical therapy place both were poor there was nothing about nutrition  they did physical therapy for legs bands ride a bike arm bike and walking one breathing exercise these are excercises I was doing before do I found it no improvement I wish there was good program in my town but no one knows of any 

Thanks! Sorry to say but I actually receive my pulmonary care at a BNTM Center. One of the rehab programs I attended was at that very medical center. Btw, I was completely unaware that it is a BNTM Center. Only learned recently about BNTM Centers and that I am already receiving my care from one through this website! Don’t quite know what to make of that!

Cjack

CJack,

I am sorry that the pulmonary rehab program associated with the center was not up to par. You can share more details by emailing contactus@bronchandntm.org if you would like us to investigate further. I do hope that you find the right center.