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Anyone else diagnosed with M. Fortuitum?

In: General Discussion
8 657
M

My first culture results came back from December bronchoscopy. M. Fortuitum is growing. It is one of the so-called "fast growing" NTMs. Anyone else diagnosed with this one? Were you treated for it? I'm searching my references and don't find much specifically on treatment, except it is mentioned in this video from Dr. Huitt at National Jewish Health. https://youtu.be/Dw8hVJp1sJU

Latest Activity: January 20, 2019
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8 Replies

Replies

K

Merry,

Hello! I vaguely recall another patient with this; I don’t recall major treatment for this one . I will look further.


Latest Activity: January 17, 2019
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Comments

M

Thanks, Katie. I appreciate it. I found one patient so far on my other support group. She has been followed over 2-3 positive cultures, but now Mayo wants to treat her with a course of two IV antibiotics, followed by oral. Of course her situation may be completely different. So many factors to consider in whether to treat or just monitor.

Latest Activity: January 17, 2019
2
K

Hello! Here is more information on fortuitum. It reviews the 2007 ATS guideline treatment. I am so sorry that you have to deal with this now.

Are you symptomatic? As you know, oftentgey will wait, observe before starting treatment. Hang in there .

Latest Activity: January 17, 2019
2

Comments

M

Thanks for the references, K! I saw some of those pictures of cutaneous M. fortuitum infections. Yuck. Yet another reason I'm glad I don't get manicures/pedicures or any spa services.

Yes, I am symptomatic...cough, fatigue, worse dyspnea...all of this starting in the late summer/early fall. And an October CT showed new nodules. The plan right now is to wait for the remaining cultures, see if anything else shows up such as MAC, perhaps get another CT and then decide. My docs have been pretty good so far about weighing all the evidence and including me in the decision process.

Latest Activity: January 18, 2019
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K
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K

Merry, I now recall where I heard of a case of fortuitim a few years ago- it was tracked to a nail salon. Just posting this an educational information for othershttps://wwwnc.cdc.gov/eid/article/11/4/04-0936_article

Latest Activity: January 17, 2019
2
K
7
K

Merry,

Hello! I am so sorry to hear that you are symptomatic at this time. I know how frustrating, nerve racking this time period can be.

Just when u feel that u r in the clear, a new issue or bug pops in. I was recently positive for MAC again but they are observing since I am not very symptomatic .

One day at a time until they work the treatment options out with you .

In the interim, must do whatever it takes to remain calm and collective.

Latest Activity: January 19, 2019
3
m

Hello Merry. I'm sorry to hear that you are having the symptoms. It's hard when another bugs coming in again. I hope the best for you.

I searched an article on google about M. Fortuitum. Here is the article.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC57489...

Latest Activity: January 19, 2019
8

Comments

M

Thanks, Made! You and I must have both been searching at the same time yesterday and I stumbled on that one too! I thought the connection between reflux and NTM infection in that case was interesting. I've been learning that some doctors are working on the theory that some NTM infections start by refluxed infected water that is aspirated into the lungs.

Latest Activity: January 20, 2019
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m

Hello Merry. Oh really that's cool that we searched it at the same time. Oh I see. So they mentioned about the connection of reflux and NTM. I wasn't reading it throughoutly. Wish you the best Merry.

Latest Activity: January 21, 2019
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