Discussions
Discussions
Are you on Arikayce and interested in sharing your story?
Insmed is kicking off their branded Patient Ambassador Program and is looking for potential patients who are currently prescribed this medication and interested in sharing their story with others to help increase awareness of MAC lung disease and treatment. These stories may be shared in a variety of ways, including at speaking events, in media interviews, in videos, in advertisements, in print materials or on our website.
If interested in learning more, please email SharingMyTreatmentStory@gcihealth.com.
Replies
I just started Arikayce and sent you an email, I'm so glad to see there is support out here for us!
I just started Arikayce and sent you an email, I'm so glad to see there is support out here for us!
I just started Arikayce and sent you an email, I'm so glad to see there is support out here for us!
I just started Arikayce and sent you an email, I'm so glad to see there is support out here for us!
I have just started. Six doses so far. Somewhat of a sore throat, slight cough, and chest congestion. I have MAC and have been on 3 antibiotics for a year. Never had a negative, yet.
Comments
San,
Hello! Welcome to the site. There are previously answered questions re: arikayce to the left . Sore throat seems to be a common issue for many patients. Kati
Welcome everyone!!
Well here I am 3 months later, still puffing on my Arikayce. I have more ringing in my ears than usual (on and off), scratchy throat, increased mucus and chest congestion (comes and goes), but no uncontrollable coughing. I started the 3 oral antibiotics (2nd time around) just before the Arikayce, so I don't know if the extreme coughing was stopped due to the anitbiotics or Arikayce. The side effects are nothing I can't live with, and hopefully the medication will target the MAC infection directly.
Well here I am 3 months later, still puffing on my Arikayce. I have more ringing in my ears than usual (on and off), scratchy throat, increased mucus and chest congestion (comes and goes), but no uncontrollable coughing. I started the 3 oral antibiotics (2nd time around) just before the Arikayce, so I don't know if the extreme coughing was stopped due to the anitbiotics or Arikayce. The side effects are nothing I can't live with, and hopefully the medication will target the MAC infection directly.
Well here I am 3 months later, still puffing on my Arikayce. I have more ringing in my ears than usual (on and off), scratchy throat, increased mucus and chest congestion (comes and goes), but no uncontrollable coughing. I started the 3 oral antibiotics (2nd time around) just before the Arikayce, so I don't know if the extreme coughing was stopped due to the anitbiotics or Arikayce. The side effects are nothing I can't live with, and hopefully the medication will target the MAC infection directly.
Well here I am 3 months later, still puffing on my Arikayce. I have more ringing in my ears than usual (on and off), scratchy throat, increased mucus and chest congestion (comes and goes), but no uncontrollable coughing. I started the 3 oral antibiotics (2nd time around) just before the Arikayce, so I don't know if the extreme coughing was stopped due to the anitbiotics or Arikayce. The side effects are nothing I can't live with, and hopefully the medication will target the MAC infection directly.
Elise,
Hello! So glad the coughing has lessened; I am sure that you feel better emotionally since the cough has improved.
Elise,
Hello! So glad the coughing has lessened; I am sure that you feel better emotionally since the cough has improved.
Elise,
Hello! So glad the coughing has lessened; I am sure that you feel better emotionally since the cough has improved.
Elise,
Hello! So glad the coughing has lessened; I am sure that you feel better emotionally since the cough has improved.
@Elisse After completing 3 months of IV treatment, my cough was gone. Now I am on Arikayce and my cough has returned with congestion.. I mentioned to my pulmo dr but it seemed not to matter to him I am considering switching to the old amakacin due to costs. $600 vs $20.
@Elisse After completing 3 months of IV treatment, my cough was gone. Now I am on Arikayce and my cough has returned with congestion.. I mentioned to my pulmo dr but it seemed not to matter to him I am considering switching to the old amakacin due to costs. $600 vs $20.
@Elisse After completing 3 months of IV treatment, my cough was gone. Now I am on Arikayce and my cough has returned with congestion.. I mentioned to my pulmo dr but it seemed not to matter to him I am considering switching to the old amakacin due to costs. $600 vs $20.
@Elisse After completing 3 months of IV treatment, my cough was gone. Now I am on Arikayce and my cough has returned with congestion.. I mentioned to my pulmo dr but it seemed not to matter to him I am considering switching to the old amakacin due to costs. $600 vs $20.
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