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Have you heard if the term “ aspergillosis” before? It is a mold that can affect the respiratory systemhttps://www.mayoclinic.org/diseases-conditions/aspergillosis/symptoms-causes/syc-20369619

Latest Activity: February 6, 2023
10
15 Replies

Replies

c

I was diagnosed with aspergillus about 5 years ago. I was given a course of Voriconazole by my pulmonologist. It got rid of that, but the NTM bacteria remains.

Latest Activity: February 2, 2023
c

I was diagnosed with aspergillus about 5 years ago. I was given a course of Voriconazole by my pulmonologist. It got rid of that, but the NTM bacteria remains.

Latest Activity: February 2, 2023
c

I was diagnosed with aspergillus about 5 years ago. I was given a course of Voriconazole by my pulmonologist. It got rid of that, but the NTM bacteria remains.

Latest Activity: February 2, 2023
c

I was diagnosed with aspergillus about 5 years ago. I was given a course of Voriconazole by my pulmonologist. It got rid of that, but the NTM bacteria remains.

Latest Activity: February 2, 2023
K

My pulmo said I showed antibodies for it but that he wouldn't treat it as we pick it up in the air.  

Latest Activity: February 3, 2023
K

My pulmo said I showed antibodies for it but that he wouldn't treat it as we pick it up in the air.  

Latest Activity: February 3, 2023
K

My pulmo said I showed antibodies for it but that he wouldn't treat it as we pick it up in the air.  

Latest Activity: February 3, 2023
K

My pulmo said I showed antibodies for it but that he wouldn't treat it as we pick it up in the air.  

Latest Activity: February 3, 2023
K

Chrissy,

So glad to read that you were able to get rid of the aspergillosis. Are you currently being treated for NTM?

Latest Activity: February 5, 2023
11

Comments

c

I was treated for MAI bacteria( not the aspergillus) with three different antibiotics for a year and a half. I finally showed that it cleared, but it came back. The treatment meds were so hard on me that I am doing my best not to go through that again. I have a compression vest, and am working with a wonderful ID doctor. She agrees that we will just go more by "how I feel" and keep an eye on my regular CT scans, and proceed from there.

Latest Activity: February 6, 2023
5
ChristinaH

@chrissy

We are glad that you are here. Happy for you that the aspergillus has been removed. NTM can be very "stubborn" to get rid of. 

Latest Activity: February 6, 2023
ChristinaH

@chrissy

We are glad that you are here. Happy for you that the aspergillus has been removed. NTM can be very "stubborn" to get rid of. 

Latest Activity: February 6, 2023
ChristinaH

@chrissy

We are glad that you are here. Happy for you that the aspergillus has been removed. NTM can be very "stubborn" to get rid of. 

Latest Activity: February 6, 2023
ChristinaH

@chrissy

We are glad that you are here. Happy for you that the aspergillus has been removed. NTM can be very "stubborn" to get rid of. 

Latest Activity: February 6, 2023
B

My labs from a bronchoscopy last year showed that I have Aspergillus fumigatus, but my doctors said they don't often treat this unless necessary because it is difficult to treat, & they believed it was not causing an infection, but was colonizing. I just had another bronchoscopy last month & now diagnosed with two forms of Aspergillus - fumigatus & flavus. I imagine the doctors will still just watch things for now, but have not met with them yet. Still being treated for MAC currently, & still awaiting lab results to see if it is cleared.

Latest Activity: May 3, 2024
4
K

Hopefully, these two bugs are just colonizing and will not result in an infection. You have enough to deal with the MAC treatments. One day at a time- all we can do is to hope for the best.

Latest Activity: May 4, 2024
7

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