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CEO Women with NTM

In: General Discussion
7 1586
C

Women with NTM and high level jobs . ( CEO, Managing director , etc ) . How do you get through your long stressful days coping with your disease?

Latest Activity: November 29, 2020
13
7 Replies

Replies

K

NTM impacts each patient in different ways; most experience a level of fatigue. Side effects from medications further impact one’s ability to function well.

Some come push through these challenges and continue to work , many cannot and are forced into early retirement or disability. Again, it varies from patient to patient.

Latest Activity: August 1, 2019
12
S

Hi, I was recently diagnosed with Bronchiectasis (during the pandemic) after CT showed nodules and scope cultures came back positive for nocardiosis and NTM. As a managing director, I am struggling with severe fatigue, hoarseness, and shortness of breath worsened by the long, stressful hours. How have others dealt with this condition professionally? I’m considering a asking for a voluntary demotion, but not sure how that will go over. I’d love to hear about your experiences.

Latest Activity: November 8, 2020
5

Comments

K

I also have nodules but they have not changed in 4 yrs the pulmo not worried about them they are very small can be left over inflammation or infection.  I have 4 lung diseases to tend with and yes the last few months have a hard time breathing my pulmo is 100 miles away and they don't want to give out pred. Last visit she said I need reconditioned.  Well need more that that.  Been trying for home vent I don't meet the requirements. 

Latest Activity: November 9, 2020
4
K

S2020,

Hello! Are you working from home? Are you able to take a medical leave? Are you taking meds for NTM?

The fatigue can be debilitating for some. As difficult as it is- it is better to face the situation at hand rather than make errors at work. Many do not understand invisible disorders and the impact it can have on one’s stamina.

Your body needs rest and good nutrients to heal. This unexpected decision is never easy to deal with. Katie

Latest Activity: November 9, 2020
11
K

I see you posted this a year ago.  I am in a similar situation and wonder how you have coped over the last year.  I work all morning then close my office door and put my head on my desk or lie on the floor on a yoga mat over the lunch hour.  After work I head straight to the couch when I get home.  I try to suppress coughs all day b/c I work in a medical clinic where everyone worries about Covid ; in fact,  staff are not supposed to come to work if they have a "new" cough.   If I didn't have my husband fussing over me, this would be really hard.

Latest Activity: November 29, 2020
K

I see you posted this a year ago.  I am in a similar situation and wonder how you have coped over the last year.  I work all morning then close my office door and put my head on my desk or lie on the floor on a yoga mat over the lunch hour.  After work I head straight to the couch when I get home.  I try to suppress coughs all day b/c I work in a medical clinic where everyone worries about Covid ; in fact,  staff are not supposed to come to work if they have a "new" cough.   If I didn't have my husband fussing over me, this would be really hard.

Latest Activity: November 29, 2020
K

I see you posted this a year ago.  I am in a similar situation and wonder how you have coped over the last year.  I work all morning then close my office door and put my head on my desk or lie on the floor on a yoga mat over the lunch hour.  After work I head straight to the couch when I get home.  I try to suppress coughs all day b/c I work in a medical clinic where everyone worries about Covid ; in fact,  staff are not supposed to come to work if they have a "new" cough.   If I didn't have my husband fussing over me, this would be really hard.

Latest Activity: November 29, 2020
K

I see you posted this a year ago.  I am in a similar situation and wonder how you have coped over the last year.  I work all morning then close my office door and put my head on my desk or lie on the floor on a yoga mat over the lunch hour.  After work I head straight to the couch when I get home.  I try to suppress coughs all day b/c I work in a medical clinic where everyone worries about Covid ; in fact,  staff are not supposed to come to work if they have a "new" cough.   If I didn't have my husband fussing over me, this would be really hard.

Latest Activity: November 29, 2020

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