Jadew,

Hello! Welcome to the site. It is great that you are reaching out for your mom; I am sure that she is grateful for you on this day.

There is no published information on cannabis and NTM. I requested information on this topic at a recent conference ; top physicians did not know of sucesss stories at this point in time.

I really wish that edibles were an option for us since we cannot smoke.

I guess that we will just have to wait a while and see if a center can get research dollars for this subject area.

I will keep you posted if and when I hear anything

Jade,

I myself have been living with a diagnosis of Bronchietasis for the last 15 years or so. It started to seem to be progressing quite rapidly in my mind over the last couple of years, I was left in bed for weeks at a time with infections and up to 23 infections in a year. I had a number of symptoms that were getting worse some examples would be extremely painful spasms, weight loss i was severely underweight, i couldnt sleep through a night without waking up breathless, i was having terrible night sweats, exercise would leave me exhausted and breathless, it was making me depressed and anxious etc..

I researched and decided to try cannabis as i had read several medical papers on the subject and found there to be enough evidence to try it.

since using it i have had 1 infection in a year and a half, i gained 50 pounds putting me at a normal weight and bmi, im not breathless, no more painful spasms i do not cough up any mucus or blood anymore normally i had to do chest exercises to remove mucus from my lungs every morning, I sleep through the night, i have not had night sweats since, i am not depressed. and i feel healthy again. it has given me my life back. since using it i have not had the need for my inhalers or other medication and i have not needed to constantly be taking antibiotics. I thought it may have been a fluke and have tested if it was in actual fact the cannabis more than once. When i have stopped using it my normal symptoms would come back in about a week. I vaporize roughly three times a week before bed and it seems to do the trick. I have also tried eating cannabis however i find the most benifit comes from vaping as you feel a noticable difference in a matter of minutes as the airwais seem to loosen up and breathing becomes less of a hassle.

Yes, I think smoking would be counterproductive but I know there are alternatives. I found this article that may have some insights. https://bronchiectasisnewstoday.com/2017/06/19/can...

Hello! Different ways to ingest medical marijuana ; we definitely need more research on how this affects respiratory patients https://www.medicaljane.com/category/cannabis-classroom/consuming-cannabis/

Their are edibles that work in the same way that smoking would , just less detrimental on the lungs. I would suggest that your mom see a doctor who deals specifically with cannabis as a treatment. . Gummy bears made with CBD oils might also be a alternative. But talk to a doctor to see if this would be ok for her.

Kandy,,

Looking forward to hearing more responses from other members and reading more research on CBD

Sut,

Thank you for your input. Yes, trying it at the lowest dose is good advice.

I did read that CBD oil interacts w some blood pressure medications.

It is wise to ask your pharmacist or a rep from the CBD company about interactions w existent medications.

Not on any blood pressure meds yet.

I have found hemp extract so far to be effective in helping my symptoms. I was diagnosed with bronchiectasis in 2005. It has progressively gotten worse even though I eat a good diet and take numerous supplements. I currently have to be on antibiotics in the nebulizer every few months to control the mucous and have frequent and long bouts of pneumonia. I have just recently started taking a low dose of organic hemp extract drops (4 drops a day) and can't believe how much it is helping. I'm taking Hemp Extract 100 by Whitecedar from Amazon. It's reasonably priced. I haven't been taking it for very long, but I'm hopeful the good benefits will continue. Hopefully you have found this helpful for your mother. She is lucky to have a daughter who is trying to help her..

Steph,

Hello! Welcome to the site.

Thank you for sharing your information re: hemp extract. I am happy to hear that you are seeing great benefits from it. I am looking forward to hearing more similar stories.

I thought I had posted this but I am everywhere so maybe for got. This shows cbd and reactions to different medications.

https://cbdoilreview.org/cbd-cannabidiol/cbd-p-450-enzyme/?fbclid=IwAR1nltHHVnEPIZHO5CLsfKvDVcAw5mhb9v10vyWA5Ihd4kU2_MwRtTwgzww

Kandy,

Hello! Thank you for posting this. This was the same article I read about the interactions with blood pressure medication. So glad that you posted this.:

Hi 😁

A little background. I've had kartagener's syndrome my whole life, but I was diagnosed with severe bronchiectasis 9 years ago after a bout with pneumonia. I was 30 years old. I've been on oxygen ever since.

After I heard the dr say there was no cure, just meds to manage the symptoms, I basically just shut down. I didn't leave the house much at all because I had to take a big tank. Sat around, because it was too much effort to do anything at all. After 5 years I had gained 50 pounds and was heaviest I'd ever been. 225 My lung capacity was 17%. The Dr told need to make an appointment with one of the medical centers that do lung transplants. Unfortunately there's none in the state I'm not real sure how I'm going to pull it off when I do it!

Sorry back to the answer...

I had been given some cannabis butter. I've since learned to make MCT oil to use sublingually. THC oil. I would take a small dose and then sit on the exercise bike. I was able to actually start exercising without the enormous weight hanging off my lungs!!! It reduced the uncomfortable pit in my chest (if you have severe mucus issues you know the pit I'm taking about!) I still had to go slow but I was able to start trying! Took a while but I was building up! 1 year later I was on the exercise bike 30-44 minutes every day!

Anyway 4 years later and I've lost the 50 pounds and 25 more! Have a (small) 6 pack!

I am a huge fan of this and feel like I need to help others in my situation. If you need advice you can message me on here I think. Try it!! Start with a low dose to see how you respond though and be safe