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Colorado

March 24, 2018

In: General Discussion

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We have recently gotten a referral approved for out of state out of network specialist. Was curious if anyone had any experience with Dr. Charles Daley at Nation Jewish Health Facility in Colorado?

Latest Activity: April 3, 2018

Replies

Ksmiles123

Hello! National Jewish is a great hospital. Does Dr.Daley evaluate children? I thought that he just sees adult patients

Latest Activity: March 24, 2018

Comments

"She_looks_normal"

I really hope not because we had to jump through hoops to get this referral. We were told he sees pediatrics? I am going to bawl if this is another dead end.

Latest Activity: March 25, 2018

Kandy

A word make sure if your going that they have your schedule ready. We drove from ND daughter and me SD all that way to have them tell me they lost my schedule. They did one thing a day and by Friday wanted us to stay into the next week. We had to leave the weekend. This was 2003 I saw sally Wenzel which she is now at Pa. Good luck if you go to Jewish!!

Latest Activity: March 26, 2018

"She_looks_normal"

Luckily I was able to speak with, let's call him our guardian angel, on Sunday. He directly emailed Dr. Daley personally on my daughter's behalf, and Dr. Daley is expecting our call this morning. It is because of this forum right here that makes a world of difference in navigating our baby girl's health!!! I am blessed and very very grateful to the wonderful people who started this forum, and to a PA I spoke to at NIH who suggested I join this site! These small, yet huge, gains reminds me that humanity and selflessness is not dead! It really does take a " Village" sometimes and I am proud to be a part of this "Village"

Latest Activity: March 26, 2018

Comments

Delia

It's so great to hear that we're able to help you with baby Sailor's health "adventures" :o) Dr. Daley was the Chair of our Bronchiectasis Research Consortium for several years and he's a leading expert in both, bronchiectasis and NTM. I'm not sure if he sees pediatric patients, but it sounds like you're in the process of determining that. Keep us posted!

Latest Activity: March 26, 2018

Gretchen

So happy you are here! It is wonderful to witness the coming together of minds and sharing of knowledge to elevate one another circumstances. Keep us posted on Sailor and if you are able to make it to any of the upcoming Bronchiectasis and NTM conferences.

Latest Activity: March 27, 2018

oklawoman

Glad you and Sailor are part of our village!! Hope all goes well.

Latest Activity: April 3, 2018

Ksmiles123

Hello! So happy to read your words.:). Yes, it takes a village to deal with most of life’s challenges. This forum reminds us that we are not alone on this journey. Getting support, being part of a community is vital to assist us in taking the necessary action steps.

I wish you the best with the phone call; please keep us posted

Latest Activity: March 26, 2018

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