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Fellow Laryngectomees & Treatment Program

In: General Discussion
5 597
R

I was diagnosed with Bronchiectasis in March 2019 just after I completed 5 months of chemotherapy for MCL (mantle cell lymphoma). During the treatment I had a couple of bouts of running fever so the doctors thought it might be pneumonia. After two bouts they did a CT scan and diaganosed Bronchiectasis. Things went well until January of this year when I started running fevers that have persisted to this day although the fevers are now below 101.4.

My big issue is having to deal with the mucus that I expel after each vest and nebulizer treatment (I do three treatments daily with the vest for 30 minutes at 80%). My nebulizer prescriptions are three treatments of Ipratropium Bromide and two treatments of Budesonide (my middle vest treatment is only with the Ipratropium Bromide). I also take twice a day 400mg of Mucinix to help break up the mucus.

Being an laryngectomee (throat cancer in 2011-2012), I am wondering if any fellow laryngectomee or some one with bronchiectasis has found a treatment that better addresses the bronchiectasis and the running of a fever every day.

I am hoping that someone can assist me in finding a treatment program that will make my bronchiectasis more manageable especially for long distance traveling, which my wife and I did prior to the pandemic.

Pray that everyone is exercising common sense during this pandemic.

Rush Stuart









Latest Activity: September 16, 2020
9
5 Replies

Replies

K

Hello Rush,

Welcome to the site. How often do they do sputum cultures? Are you growing anything currently which may explain the ongoing temperatures? Are you able to exercise , tai chi, qichong daily? Are you eating balanced meals? I realize that meal preparation requires a lot of energy for many patients. Do you drink adequate water on a daily basis to loosen the secretions?
I will post the 123s of Bronchiectasis Treatment.

Katie

Latest Activity: September 16, 2020
1
K
Latest Activity: September 16, 2020
2
D

I I too have bronchiectasis worst thing you got to do is take Mucinex it's the worst thing you could take don't take my Mucinex okay I hope you listen what I'm saying

Latest Activity: September 16, 2020
2
K

Danny,

I am sorry that mucinex didn’t agree with you.

Mucinex does help some patients; I took it for quite some time when I was not well. It is also pricey, there are generic substitutes for mucinex. Each body responds differently to drugs.

Latest Activity: September 17, 2020
1
K

Hi Danny welcome. Mucinex didn't do anything for me.

Latest Activity: September 18, 2020
6

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