Discussions
Discussions
Fellow Laryngectomees & Treatment Program
I was diagnosed with Bronchiectasis in March 2019 just after I completed 5 months of chemotherapy for MCL (mantle cell lymphoma). During the treatment I had a couple of bouts of running fever so the doctors thought it might be pneumonia. After two bouts they did a CT scan and diaganosed Bronchiectasis. Things went well until January of this year when I started running fevers that have persisted to this day although the fevers are now below 101.4.
My big issue is having to deal with the mucus that I expel after each vest and nebulizer treatment (I do three treatments daily with the vest for 30 minutes at 80%). My nebulizer prescriptions are three treatments of Ipratropium Bromide and two treatments of Budesonide (my middle vest treatment is only with the Ipratropium Bromide). I also take twice a day 400mg of Mucinix to help break up the mucus.
Being an laryngectomee (throat cancer in 2011-2012), I am wondering if any fellow laryngectomee or some one with bronchiectasis has found a treatment that better addresses the bronchiectasis and the running of a fever every day.
I am hoping that someone can assist me in finding a treatment program that will make my bronchiectasis more manageable especially for long distance traveling, which my wife and I did prior to the pandemic.
Pray that everyone is exercising common sense during this pandemic.
Rush Stuart
Replies
Hello Rush,
Welcome to the site. How often do they do sputum cultures? Are you growing anything currently which may explain the ongoing temperatures? Are you able to exercise , tai chi, qichong daily? Are you eating balanced meals? I realize that meal preparation requires a lot of energy for many patients. Do you drink adequate water on a daily basis to loosen the secretions?
I will post the 123s of Bronchiectasis Treatment.
Katie
Rush,
Below is the link for the 123s of Bronchiectasishttps://www.bronchiectasisandntminitiative.org/Bronchiectasis/Bronchiectasis-Resources/1s-2s-and-3s-of-Bronchiectasis
I I too have bronchiectasis worst thing you got to do is take Mucinex it's the worst thing you could take don't take my Mucinex okay I hope you listen what I'm saying
Danny,
I am sorry that mucinex didn’t agree with you.
Mucinex does help some patients; I took it for quite some time when I was not well. It is also pricey, there are generic substitutes for mucinex. Each body responds differently to drugs.
Hi Danny welcome. Mucinex didn't do anything for me.
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