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Gerd and chronic NTM

In: General Discussion
10 10613
B

How should GERD be diagnosed especially if it may be silent? And what kind of treatment is there? i.e. how aggressive should one be in persuing treatment in an effort to eradicate chronic NTM not eliminated by multiple courses of antibiotics

Latest Activity: June 29, 2018
8
10 Replies

Replies

K

Barb,

Hello! Below are links re: silent gerd. There are many medication options, diet restrictions, etc. Please see the article on Reflux posted under blog on the left side of this screen. You will lessen the chance of recurring infections by taking preventive measures listed in the blog article. The goal is to lessen the spillage of gastric contents into your lungs. Change in does not happen overnight, it takes time to change dietary habits but it surely does pay in the long haul.

https://www.medscape.com/viewarticle/731055

https://www.healthline.com/health/silent-reflux

https://www.medicalnewstoday.com/articles/314531.p...

Latest Activity: March 5, 2018
8

Comments

B

Thanks for your response. I am well aware of all these articles. I have NO silent GERD symptoms but do practice all the lifestyle modifications including an hourly fluid restriction of 6 oz recommended to me by my doctor. I am currently on my 3rd course of 3 antibiotics over the last 5 years and have never gotten rid of MAC. Also had a PICC line with a course of Amikacin. Has anyone had surgery for GERD to eliminate the problem? Only work up has been an upper gi with barium which showed reflux and a GI Consult. The GI Doc said I didn’t fit the profile of GERD due to my lack of any symptoms

Latest Activity: March 6, 2018
3
K

Barb,
You are welcome. It is good that you do not experience the GERD symptoms which are troublesome for some patients. I do not know anyone who had the surgical procedure for GERD. My doc warned me of a possible negative outcome for respiratory patients. These procedures are fairly new; I am interested in seeing if anyone on this site who has had the surgery responds.

Latest Activity: March 7, 2018
2
K

I was told I have silent gerd.

Latest Activity: June 29, 2018
L

Silent Gerd is fairly common, and can be diagnosed by a manometry test. I had one that they put in and left the thing overnight to see if I was silently refluxing at night (yes) they also can measure how much of it is acid and how high it comes. The test is uncomfortable but worthwhile for the answers they got. Refluxing up into your lungs can wreck havoc and cause more infections but I'm sure you know that.

I don't eat or drink anything for two hours before I go to bed. I elevate the head of my bed, and when away from home I put extra pillows under the mattress on my side to raise it. I know it sounds crazy but it works

Latest Activity: March 10, 2018
3
K

LornaLee,

It doesn’t sound crazy.; most of us do the same thing. Preventive measures , as you mentioned are the key to lessen night time reflux and lung issues.

It has taken me along time to be truly compliant . We all want to live the way we once lived. However, I chose the dietary changes, elevating head over bed over increasing PPIs which have several reported adverse effects if you take them long term.


Latest Activity: March 10, 2018
7

Comments

o

I agree with Ksmiles123. Preventative measures are the best and compliance is important, especially if you want to decrease/limit the PPIs and other GERD meds.

Latest Activity: April 3, 2018
1
t

I have silent GERD too. Was diagnosed by a barium swallow with speech. (combination of interventional radiology and speech department.) They wanted to see if food was getting stuck, coming back up you know the drill. So even with silent GERD, it was coming all the way up to my pharynx. I’m supposed to take 150 mg of Zantac a day, but I don’t see how that is going to prevent the reflux. All it’s going to do is make it less acidic. I’ve got a hiatal hernia and Zantac’s not going to help that.

Other options are Nexium or Prilosec. But even with these you still need the antibiotics. Theyrnot a substitute.

Latest Activity: June 28, 2018
1
K

Teaberry,

Hello! I am finding that the most important aspect of reflux is to really adhere to a anti- reflux diet. It is so hard to stay compliant but it certainly pays off.

Staying away from foods, chocolate, etc. is definitely helping me. There is an article in the blog section re: foods to avoid.

Keep us posted

Latest Activity: June 28, 2018
6
l

I have found that drinking alkaline water greatly helps to control my herd symptoms. I have been able to eliminate using any meds to control it since I began. I use it exclusively for my drinking water.

Latest Activity: September 10, 2018
2
K

Hello! Welcome to the site. Great to hear that you have identified a remedy that assist your GERD. Yes, the goal is to reduce the acid anyway we can.

I have cut out carbonated beverages such as flavored seltzer, Diet Coke, tomatoes, garlic, chocolate-all things that I truly love in order to lessen the need for PPIs. it is just not worth aggravating reflux at this point in time.


Elevating the head of your bed 30 degrees greatly assists as well

Latest Activity: September 10, 2018
2
K

Mine really took off with taking 3 antibiotics. On bland diet for now all these meds are tough.

Latest Activity: September 10, 2018
3
K

Yes, multiple antibiotics can be tough on our stomach. Good luck Kandy. I hope that this treatment really helps you and goes as smoothly as possible

Latest Activity: September 10, 2018
4
K

My daughter knew i had silent gerd cause of coughing in the night sleeping no other signs of being sick.

Latest Activity: September 11, 2018
5

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