Discussions
Discussions
How to Curb Side Effects of Arikayce
Good Morning. I am looking for any personal information members are willing to share. My mother just started using Arikayce and has been coughing like crazy and has extreme fatigue. If anyone is using this med, has a family member using it or is a caregiver for someone that is, can you please tell me what has been successful to help ease the cough or fatigue? Thank you in advance. I hope everyone is well today!
Replies
Hello! Welcome to the site. Fatigue is a symptom that most patients experience with a NTM infection. Does she use Albuterol nebulizer as well before the arikayse? Has she contacted her doctor if the coughing has greatly increased?
Below is a link for Arikayce patient support: https://www.arikayce.com/
Thank you. The cough has eased up but the fatigue is what is her biggest challenge right now. She’s had eight days of Arikayce and is on the triple antibiotic cocktail for 5.5 years which she has tolerated remarkably well.
You are most welcome! 5 years is a long time to be treated w 3 antibiotics. Has your mom been evaluated at a NTM research hospital?
Comments
Hello Lisam261 welcome!
Here's the number to the support line as well. Call Arikares at 1-833-ARIKARE (1-833-274-5273) or 1-973-437-2376 Monday through Friday from 8 AM to 8 PM ET
It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.
Community posts are monitored by the 360social Community Manager, as well as staff respiratory therapists, educators, and other medical professionals.