Discussions
Discussions
International Bronchiectasis programs
Are there international programs offered to those with Bronchiectasis? I'm definitely interested to know what other countries are doing in terms of research and patient support!
Replies
Hi Megan, the COPD Foundation has partnered with a few international organizations in an effort to establish registries similar to the Bronchiectasis and NTM Research Registry. Below is more information on each of the international organizations the Foundation has partnered with.
- EMBARC: The European Bronchiectasis Registry - A pan-European network with 123 centers participating in the Registry. To learn more about EMBARC, visit: https://www.bronchiectasis.eu/
- Australian Bronchiectasis Registry - A research project that has been initiated by a group of Australian specialist respiratory doctors together with Lung Foundation Australia. To learn more about the Australian Bronchiectasis Registry, visit: http://lungfoundation.com.au/health-professionals/...
- BRONCH-UK Registry: The United Kingdom Bronchiectasis Registry is a national research database and biobank of adults with Bronchiectasis. To learn more about BRONCH-UK, visit: https://www.bronch.ac.uk/
It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.
Community posts are monitored by the 360social Community Manager, as well as staff respiratory therapists, educators, and other medical professionals.