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Is there anyone in the world like me with ongoing symptoms post influenza?

In: General Discussion
3 1839
G

This is a question from participant Elaine.

After having severe H1N1 swine flu in 2009, followed by another chest infection within 10 days - my health and lifestyle changed. My main continuing issues are -

persistent throat clearing and occasional cough

SOB on exertion

constant extra tiredness

humidity is unbearable - mucus cough, feel like I can't breathe

cough around irritants - ie smoke

After years of treatment for asthma like symptoms [with no effect]and other conditions [with no effect], only through my persistence I have been diagnosed with Adult aquired tracheomalasia [mild]after bronchoscopy and NCF Bronchiectasis [mild] after scans.

My question is - Is there anyone in the world like me with ongoing symptoms post influenza?????

Thankyou

Elaine from Australia

Latest Activity: September 27, 2018
11
3 Replies

Replies

K

Hello Elaine,

Yes, many patients share the common symptoms . When was the last time you had a sputum culture and sensitivity? Have you been worked up for reflux recently?

Yes, the symptoms, especially in the humidity are extremely challenging

Latest Activity: July 28, 2017
9
M

Brand new to this group!

While I have always had some breathing issues, I also had severe flu from the H191 in 2009. Following that, I developed pneumonia in 2012 and was hospitalized. After the hospitalization, I was diagnosed with bronchiectasis.


Latest Activity: September 7, 2018
5

Comments

G

Welcome Mindyb77! Thank you for sharing-did the doctors ever talk about any correlation between the flu, pneumonia and the bronchiectasis diagnosis? I hope the last few years have been better with your symptoms. Happy you have joined!

Latest Activity: September 7, 2018
3
M

They didn't. I have had the excess mucus symptoms for years. I think the bronchiectasis went undiagnosed for years prior and probably contributed to the pneumonia. I have had issues since I was a small child and got bronchitis yearly.

Latest Activity: September 26, 2018
1
K

I would assume the many infections would be a cause of the bronchiectasis. Sure this is the cause of mine but over the years with many asthma then a lot of bronchitis then and overlapping to copd causing my bronchiectasis

Latest Activity: September 27, 2018
1
K

Mindy,

Hello! Welcome to the group.

Many patients do get a break from bugs and major symptoms for awhile ;Ongoing fatigue, cough and other symptoms may persist but not as badwhen treated properly.

Do you see a pulmonologist every three months? When was the last time you had a sputum culture?

Latest Activity: September 7, 2018
6

Comments

M

Hello!
I do see a pulmonologist every 3 months. It's been a while since I had a sputum culture. Honestly, I've only ever had that done twice I think. How often should I be doing that?
I live a pretty normal life. I work full time. I have a 13 y/o daughter who plays tons of sports so I'm always on the go. I just feel like I never stop coughing.

Latest Activity: September 26, 2018
1
K

Both times I have did sputum is always normal flora. Just had week in hospital this month they decided to do a bronchoscopy finding nothing. Was all inflammation and I do take zpak 3 times a week. Going to be discussing this on 9th after visit with pulmo after hospital stay. Zpak is given to help with inflammation.

Latest Activity: September 27, 2018
1

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