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Lobectomy prognosis

In: General Discussion
2 824
D

My mother had her right upper and middle lobes removed 2 weeks ago today. She has emphysema/COPD and NTM, diagnosed 2013. She is still extremely weak and on home oxygen. Has anyone been through this or have a family member that has been through this? Did you have to stay on oxygen? What is your quality of life now? If a family member, did your loved one survive? My mother is very thin/low body weight and did not exercise prior to surgery and now she can barely walk two steps without gasping.


Latest Activity: March 23, 2024
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2 Replies

Replies

J

Hi Danielle,

I had a lobectomy. I was weak for the first week or two. Your mom needs to tell her pulmonologist and surgeon how she is doing. She may need oxygen for a while. She may have a collapsed lung. She may still have fluid in her lungs. You can call us at 833-411-5864 for more information.

Latest Activity: March 23, 2024
8
ChristinaH

Hi Daniellle.

First, I wanted to say that you are a wonderful daughter to be taking the time to find helpful information from your mom. Our community loves to support caregivers and family members on this journey. I agree with John. I think that your mom's symptoms may require her doctor to take another "look". I will say that everyone's recovery from this major surgery will be different. Whether or not your mom needs oxygen long-term is an unknown. Is your mom participating in pulmonary rehab? We often worked with pre and post-lung surgery patients to help get them stronger and get to know their "new normal" after surgery. I think it could be something to look into!

Latest Activity: March 26, 2024
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