Thank you for this list. Can I also ask if any members of this group would recommend specific doctors in Atlanta or St. Petersburg that May not be on this list ?
I don’t have MAC; do have bronchiecstasis with the one bacteria showing up - b. cepacia. Not that one isn’t too many.
Thanks so much.

Hi storytell,
I also have bronchiectasis with b. cepacia. I recently started seeing Dr. Colin Swenson, Emory Clinic in Atlanta and his sub speciality is bronchiectasis. He prescribed me with Bactrim DS and after 14 days course, I'm still feeling very weak and tired. Are you getting better and get rid of that bug? 

@Storyteller
Hi storytell,
I also have bronchiectasis with b. cepacia. I recently started seeing Dr. Colin Swenson, Emory Clinic in Atlanta and his sub speciality is bronchiectasis. He prescribed me with Bactrim DS and after 14 days course, I'm still feeling very weak and tired. Are you getting better and get rid of that bug? 

@Cho Htun
Thanks so much for your recommendation.
I have been free of b. cepacia for over a year . I submit monthly sputum samples to check for bugs and use the vest twice a day for 12 minutes morning and evening.
I wish you great success in getting rid of the b. Cepacia. 
Can you be prescribed a vest for airway clearance ?
Storyteller

Afflo vest is portable, I have the Hil Rom which is stationery.  There are other brands too. 

@Storyteller
Thank you very much for your reply. So glad you are free of B.cepacia. I was told that that bug is resistent to most antibiotics. I'm so afraid of that. What antibiotic did you use? Did you have to inhale too? I'm now using saline 3% nebulizer in the morning and night and aerobiker too.  I have to do posture drainage too. I'm not sure if the doctor can prescribe vest.   The doctor said I have mild to moderate bronchiectasis but the symptoms are coughing every day with mucus. I really want to get rid of this bug because I am feeling fatigue most days. Please share me your management techniques if you have time. Thank you.

@Kandy
Thank you. I'll ask my doctor. 

@Storyteller
Here is monthly discussions from Dr. Swenson. 
https://ntmtalk.com/

@Storyteller
Hello. This is Cho again. I met with my doctor and Burkholderia is still there in my sputum. He said it is showing as 2+ and do not need to treat at this point. I don't understand what is the meaning of that. He said it is very hard to get rid of B. Cepacia and there will be pharge therapy in the future. So, you are free from B.Cepacia for a year. I know there are different spices but what antibiotic did you use? I had covid a month ago and had a rough time with my lungs. When will you move to GA?

Thank you, Storyteller, for your reply. I do not know Dr. Hunt, but his clinic is the same as Dr. Swenson's.  Does it mean B.Cepecia is still showing in your sputum culture? Mine is still showing as 2+ but the doctor told me that it does not need treatment at the moment. I bet mine was growing a lot last year and treated with high dose Bactrim in October (2 weeks) which made me very sick. What was your Bactrim does?  This is frustrating because I really want it to go down to maybe 1 or 1+.  For phages therapy, they need to study more on people with CF.  I'm feeling weak most of the time, not sure because of Covid that I had in Jan or from this bug.  Hope you will move to GA soon.

Hello Storyteller, you can look Dr. Swenson's reviews on Emory web page. I have only had 2 visits and based on my experience, he is very attentive and spends enough time for my concerns and questions.  I'm glad that you will send him in October.  I just submitted another round of sputum culture and hoping B Capecia load will go down.  I'm Ok but not like I used to, fatigue is there not sure this is from bronchiectasis or covid that I had in Jan. 
Sorry for my late response,  taking a bit long to change my password to join back as Cho Htun.