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On antibiotics for life
I orginally had MAC in 2008, was treated with azithromycin, refampin, and ethambutol. Cleared in 2010 by the ID doc to stop meds. Ten years later, I'm back with another MAC. He put me on Azithromycin and Ethambutol for life. Said I was too prone to catching something again. Recently I had to stop the Ethambutol because of my worsening eyes. I am wondering if anyone is in a similar situation and what drugs are you taking. I need to find a replacement for the Ethambutol. It cannot be Refampin due a reaction to another drug I am on for migraines.
Replies
Kimm,
Hello! Are you being treated at a Research Center?
Hi @kimm. I am sorry that you have had another infection of MAC. I am hoping that some of our community members can offer some of their experiences with other medications. Typically, those three medications (often called the big 3) you first mentioned are used for at least the first 6 months to fight the MAC and then if the MAC isn't budging your drug regimen will change.
Hi @kimm. I am sorry that you have had another infection of MAC. I am hoping that some of our community members can offer some of their experiences with other medications. Typically, those three medications (often called the big 3) you first mentioned are used for at least the first 6 months to fight the MAC and then if the MAC isn't budging your drug regimen will change.
Hi @kimm. I am sorry that you have had another infection of MAC. I am hoping that some of our community members can offer some of their experiences with other medications. Typically, those three medications (often called the big 3) you first mentioned are used for at least the first 6 months to fight the MAC and then if the MAC isn't budging your drug regimen will change.
Hi @kimm. I am sorry that you have had another infection of MAC. I am hoping that some of our community members can offer some of their experiences with other medications. Typically, those three medications (often called the big 3) you first mentioned are used for at least the first 6 months to fight the MAC and then if the MAC isn't budging your drug regimen will change.
Hi @kimm. I am sorry that you have had another infection of MAC. I am hoping that some of our community members can offer some of their experiences with other medications. Typically, those three medications (often called the big 3) you first mentioned are used for at least the first 6 months to fight the MAC and then if the MAC isn't budging your drug regimen will change.
Hi @kimm. I am sorry that you have had another infection of MAC. I am hoping that some of our community members can offer some of their experiences with other medications. Typically, those three medications (often called the big 3) you first mentioned are used for at least the first 6 months to fight the MAC and then if the MAC isn't budging your drug regimen will change.
Duke hospital, Durham, by the best ID dr in the state
Hello! I have never heard of anyone being on Ethambutol for life.
Hello! Above is the link for the top NTM experts, listed state by state.
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