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Post bilobectomy & MAC treatment

In: General Discussion
1 588
C

Hi all, I had a bilobectomy 5/3/23 after a bronchiectasis & MAC diagnosis December 2022. My pulmonologist said my future might be better since the bronchiectasis was very localized. I am 4 months postop & mildly symptomatic: cough, clear to white sputum ( able to clear daily), riding my bike 3 times a week (30-60 miles total), hiking uphill for an hour…I think I’m doing pretty well. My last CT 7/23 shows no progression of bronchiectasis. I’m concerned I still have MAC & want to preserve remaining lung tissue. How do I know it’s not there any longer? Induced sputum did not produce a viable sample. Pulmo now says we’ll do another CT in a year & see what’s happening. I asked for
CT sooner. 6 mos now. Anyone know the likelihood of clearing MAC via surgery? Should I push for a scope or a better induction test to get a sample now? If anyone has any experience or thoughts, I’d greatly appreciate hearing from you.

Latest Activity: August 25, 2023
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1 Replies

Replies

K

Hello! I would suggest a better induction test or ask your doctor to order a few normal saline nebulizer treatments for you to do at home. Saline helps bring the mucus up and out. Perhaps, combine it w mucinex for a few days. We have a better peace of mind when we know exactly what is going on in our bodies.

Latest Activity: August 24, 2023
7

Comments

C

My sentiments exactly. I want to know what I’m dealing with, be empowered. I received my nebulizer & saline after the induction. I am disappointed the RTs didn’t have more to offer to try to get a sample. I will run this by my pulmonologist. 

Latest Activity: August 25, 2023
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