Discussions
Discussions
Re: Clofazamine
Hi everyone, my MAC is back for the third time and my local doc is talking to National Jewish about adding Clofazamine to my other 3 meds. It really looks scary the way it turns your skin colors 75-100% of the time. Has anyone else taken this. Are there patches of color or does it just turn all your skin a weird color. I still work part time with the public and volunteer at an animal shelter and I fear I will be confined to indoors. I sure wish I could find some pictures online of what my skin might possibly look like, but so far no luck.
Replies
Hello! The discoloration varies amongst patients. I hope that members chime in
Comments
Hi KC,
I've had MAC for about 4 years now and take the 3 popular meds. I started taking the Clofazimine in the middle of January 2020 but only 50mg. I just saw my Doctor for followup last week and she increased my dose to 100mg, which as I understand is the usual dose. So far, I have no discoloration of my skin and I haven't had any side effects. My Doctor told me she has a male patient on Clofazimine and his skin looks like he was on vacation in Hawaii, however I do not know how long he has been on the medicine. I will let you know when my skin appears to change color... hopefully to a nice Brazilian tan. LOL! Let us know how you do on the Clofazimine. Thanks
Comments
I took clofazimine 4 years ago and had no problems. My skin did turn a slight orange but most people thought I had been to the islands! It does go away and then you kind of miss being tan. I did not have any stomach or mouth issues. All in all, it was an easy drug for me. I had MAC for 10 years and this was the key to killing it. Well worth it!
I took 100 mg for 6 months before I started noticing the tanning. Then my dose was cut to 50 mg for another 6 months. I am allergic to a lot of the other meds so there were not many options to choose from I am getting ready to start another round of it because I now have M. Masseliense.. Good luck!
Comments
Hi KC,
I know this response is late, but maybe it will still be helpful. I have been on Clofazimine twice, each time for a year. My skin darkened after about three months and stayed dark until about three months after I stopped taking it. I also had dry and itchy skin, particularly on my lower legs. Neither of these were bad enough to stop taking the medicine.
Hi KC,
I know this response is late, but maybe it will still be helpful. I have been on Clofazimine twice, each time for a year. My skin darkened after about three months and stayed dark until about three months after I stopped taking it. I also had dry and itchy skin, particularly on my lower legs. Neither of these were bad enough to stop taking the medicine.
Hi KC,
I know this response is late, but maybe it will still be helpful. I have been on Clofazimine twice, each time for a year. My skin darkened after about three months and stayed dark until about three months after I stopped taking it. I also had dry and itchy skin, particularly on my lower legs. Neither of these were bad enough to stop taking the medicine.
Hi KC,
I know this response is late, but maybe it will still be helpful. I have been on Clofazimine twice, each time for a year. My skin darkened after about three months and stayed dark until about three months after I stopped taking it. I also had dry and itchy skin, particularly on my lower legs. Neither of these were bad enough to stop taking the medicine.
Hi KC,
I know this response is late, but maybe it will still be helpful. I have been on Clofazimine twice, each time for a year. My skin darkened after about three months and stayed dark until about three months after I stopped taking it. I also had dry and itchy skin, particularly on my lower legs. Neither of these were bad enough to stop taking the medicine.
Thank you for your response.
Thank you for your response.
Thank you for your response.
Thank you for your response.
Thank you for your response.
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