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Reduced lung function

In: General Discussion
17 1142
J

So I’ve had Bronchiectasis for years with just some coughing. But this year in addition to 2 flares I get short of breath when I’m not flaring. My breathing is clear otherwise.. The shortness of breath has seemed to come on quickly. Has anyone else experienced this. ?

Latest Activity: November 6, 2023
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17 Replies

Replies

K

Hello! Welcome to the site. Have you had a chest X-ray or cat scan recently?

Latest Activity: December 4, 2021
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J

Thanks so much for asking. I have several Ct scans. One was this past August. Nothing new showed up except that I have an aortic valve leak that has increased a bit. (That was found on an echocardiogram). So that’s why I’m curious. No major changes to my lungs except I feel my Bronchiectasis more. But my aerobic abilities are way down.

Latest Activity: December 4, 2021
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K

Jeffrey,

When was the last time that you had a sputum culture and sensitivity

Latest Activity: December 4, 2021
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Comments

J

Good question. But in spite of another flare it's hard for me to catch and deliver sputum, however at my next visit I'm going to discuss 

Latest Activity: November 3, 2023
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J

I’ve never had one!

Latest Activity: December 4, 2021
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K

I would strongly recommend that you discuss this with your doctor. It is a way to see what is going in your lungs

Latest Activity: December 4, 2021
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J

Thank you. Yeah I guess that’s the best thing to do.

Latest Activity: December 7, 2021
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J

I would like to add that albuterol with a nebulizer brings a lot of calmness to my cough.

Latest Activity: November 3, 2023
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J

Has anyone heard of Bronchiectasis Flares causing myocarditis? I ask because it's been suggested by one of my doctors recently that it caused mine.

Latest Activity: November 3, 2023
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K

Any medical issues, especially a respiratory issue will make your heart work harder than usual. The stress of a flare plus your heart working harder may contribute to existent cardiac issues.

How long have you had myocarditis?
I hope that you feel better soon.


Latest Activity: November 3, 2023
4
J

I was found to have myocarditis in December of 2021, 2 months after my first Bronchiectasis flare. And I have noticed in the 2 flares since then a heart rate a little over 100 bpm is an early sign a flare is coming. My myocarditis creates arrhythmias which was only recently explained to me. Makes me a little concerned about what my next flare may do to my heart.

Latest Activity: November 3, 2023
3
J

But I am not certain when myocarditis happened. The flare was the only time I had anything severe happen that could explain it.

Latest Activity: November 3, 2023
2
K

Jeffrey,


Hello! We will assist you in doing all of the possible preventative measures to lessen your chances of recurring flare ups. Regular airway clearance is of utmost importance.

Have you read all of the materials on the menu above, under Learn More? & the blog articles.Knowledge is power! Please reach out with any specific questions.

It takes a supportive team to keep well; we just can’t rely on one health care professional to improve the quality of our lives. Katie

Latest Activity: November 3, 2023
3
J

Thank you and exactly. I'll read thru the materials on the blog. Airways clearance is just what I'm having trouble with for the first time.

Latest Activity: November 3, 2023
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K

Jeffrey,

Perhaps a different airway clearance device will work for you if your current device isn’t working for you?

Latest Activity: November 3, 2023
5

Comments

J

So I don't yet have a device other than albuterol and nebulizer. Today I kept getting short of breath. So I tried postural drainage position associated with base of lungs and my lungs haven't felt that open in years. I didn't cough once today and since doing it I'm am coughing frequently, but no longer short of breath. You are a godsend 

Latest Activity: November 6, 2023
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360Coach Brandon

Great to hear it was successful for you!

Latest Activity: November 6, 2023
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J

Regular Airway Clearance. Interesting. New to me so I'm researching.

Latest Activity: November 6, 2023
7
o

Did you do a sputum culture? Infection could be a cause, according to my pulmonologist.

Latest Activity: December 19, 2023
2
K

Yes, a sputum culture and sensitivity is the important part of an accurate diagnosis.

Latest Activity: December 19, 2023
7

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