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Should not be breathless anymore

In: General Discussion
9 606
E

Hello,I have the mildest form of Bronchiectasis. I have reached a point where my Specialist and my GP tell me I should be breathing normally now. I am still often breathless when doing housework or when I go for a walk, I still cough occasionally and bring up phlegm nearly every day. I know to breathe in through my nose and out through my mouth when breathless to bring breathing back to normal (when I remember)

I have never been asked for a sample of phlegm when I have an infection or given an Action Plan. I feel I can no longer talk to my Drs. as they don't have an answer as to why I'm still breathless.

I take a mild sleeping tablet occasionally and wondered if that is why I am breathless, I assume when I don't take one it's still in my system days after. I don't have any other ideas

Latest Activity: August 22, 2023
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9 Replies

Replies

L

Is yoour specialist an Infectious Disease doctor? If not, you may want to seek out one in your area. I think a sputum culture is definitely needed, however, it takes 6-8 weeks to produce results. All medications have side effects. Check into the sleeping tablets you take. If there still are no answers or explanations to your breathlessness, possibly check with a cardiologist? Maybe a stress test is necessary. I'm not a medical expert just offering suggestions. Best of luck and I hope you feel better quickly. I'm sure it is difficult not having answers.

Latest Activity: August 18, 2023
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Comments

E

I have not seen a specialist for over a year since he said there was nothing more he could do for me as in his opinion tests showed I was ok now.
My GP said the sleeping tablet shouldn't effect breathing but I'm not sure, I'm still breathless if I don't use them.
My GP (3rd one in several years) sent me for all heart tests, my heart is good except for some leakage which is apparently normal at my age, 79.

Latest Activity: August 22, 2023
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K

Elaine

I ditto Lusaka response

1) sputum culture/ AFB test is necessary if not done recently

2) cardiology visit

3) I don’t think an occasional sleeping pill will contribute to breathlessness

I would seek a 2nd opinion if your doctor isn’t willing to order a sputum test.

Don’t give up hope! Please keep us posted.

Latest Activity: August 18, 2023
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Comments

E

I haven't asked for a sputum test and it hasn't been offered.  I don't like to ask especially as I'm told by specialist and GP I should be better.
I have had heart tests and my heart is good except for some leakage which is apparently normal at my age 79.
My GP is the 3rd I have had over the years and I have improved greatly but not completely.  I have a Care Plan to help in the house.

Latest Activity: August 22, 2023
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ChristinaH

HI Elaine F.L..

This is a great question (and probably one that many in our community have). When you have a lung condition, lots of things can contribute to feeling short of breath. In my professional opinion, when you have a progressive chronic lung condition, your GP can't tell you that you should be breathing normally. Some things that can impact your shortness of breath are mucus pooling, seasonal allergies, strong fumes, exertion and so much more.

You mentioned your mucus production. Are you doing airway clearance once or twice daily? (Typically, twice daily is best.) Also, do you have any fast-acting rescue inhalers (e.g., albuterol) prescribed to you? If you "prep" your lungs with the inhaler before an activity that typically makes you breathless, it may help to prevent the breathlessness from coming on so fast. (And more than likely, it will help with how fast your breathing recovers as well.)

I agree with Katie. It may be time to get a sputum culture to make sure you don't have any infections going on in your lungs. I also don't think that taking a half sleeping pill is impacting your breathlessness. If anything, getting a restful night's sleep is helping you have the energy to manage your breathlessness better.

Latest Activity: August 18, 2023
7

Comments

E

I don't do airway clearance anymore, I found I do better just letting mucus come up itself, which is daily.
I take 2 puffs of DuoRest & one puff Bretaris both twice a day.  I was on these before Bronchiectasis but for my asthma.  Haven't had an asthma attack for many many years.
If I'm going for a walk I use Ventolin before hand, it doesn't help I don't think.
Strange but as soon as I sit down or stop my breathing returns to normal.

A sound nights sleep is a huge problem.  I can be up until about 4am or I wake very early and I can't seem to change this situation.  After the tv goes off I try reading.

Latest Activity: August 22, 2023
4
E

I don't do airway clearance anymore, I found I do better just letting mucus come up itself, which is daily.
I take 2 puffs of DuoRest & one puff Bretaris both twice a day. I was on these before Bronchiectasis but for my asthma. Haven't had an asthma attack for many many years.
If I'm going for a walk I use Ventolin before hand, it doesn't help I don't think.
Strange but as soon as I sit down or stop my breathing returns to normal.

A sound nights sleep is a huge problem. I can be up until about 4am or I wake very early and I can't seem to change this situation. After the tv goes off I try reading.

Latest Activity: August 22, 2023
4
E

I don't do airway clearance anymore, I found I do better just letting mucus come up itself, which is daily.
I take 2 puffs of DuoRest & one puff Bretaris both twice a day. I was on these before Bronchiectasis but for my asthma. Haven't had an asthma attack for many many years.
If I'm going for a walk I use Ventolin before hand, it doesn't help I don't think.
Strange but as soon as I sit down or stop my breathing returns to normal.

A sound nights sleep is a huge problem. I can be up until about 4am or I wake very early and I can't seem to change this situation. After the tv goes off I try reading.

Latest Activity: August 22, 2023
4
K

Elaine,

Sleep issues are very common for respiratory patients especially as we age. I assume that you have discussed this with your doctor?

Latest Activity: August 24, 2023
4
K

Elaine,

Below is a link to get more information on sleep 💤 disorders: https://insomnia.sleep-disorders.net/living/racing-thoughts-and-anxiety

Latest Activity: August 24, 2023
2
K

Elaine,

Here is another link:

https://insomnia.sleep-disorders.net/living/managing-fatigue

You can subscribe to the newsletter if you are interested.

Latest Activity: August 24, 2023
3
K

Elaine ,

Information on background white noise devices that assist you with sleep: https://www.sleepfoundation.org/noise-and-sleep/white-noise

Latest Activity: August 24, 2023
7
E

A couple of weeks ago I had another CT which also came back very mild Bronchiectasis which means I should be breathing normally.. I do believe the sleeping tablets I take some nights cause my breathlessness. The Dr. changed the one I am on and there has been a little improvement. I still bring phlegm up. The Dr. does not believe me and I would change him if there wasn't a shortage of Drs. taking new patients and charging Medicare only.

I will accept the situation as reading the report I can see there is nothing to be done. I exercise and use my inhalers daily as perscribed.

Latest Activity: September 2, 2023
2
K

Elaine,

You are doing the right thing by trying a different sleep medication. Have you seen an allergist/ ENT doctor recently?
I am glad you are exercising,??regular airway clearance?

Latest Activity: September 2, 2023
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