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What is pseudomonas? Has anyone experienced pseudomonas? If so, what was the treatment?

In: General Discussion
33 18582
S

I was diagnosed with pseudomonas a few months ago & had a hard time getting it resolved. They had to change antibiotics a few times.

Latest Activity: April 22, 2019
19
33 Replies

Replies

L

Chronic sinusitus showed it's ugly side. Remember during the course of many endless consecutive months and the duration of just short of a year, all proved in vain with me taking numerous lengthly antibiotics. Nothing was helping! A long swab into the upper passage airways and the smear sent off for growth, proved conclusive. I had pseudomonas infection combined with a nasal MRSA infection. The answer lay in placing me on specific intravenous drug therapies using the ball decreasing medications at home. It took a while, but they finally got the invaders in check.

Latest Activity: August 14, 2017
L

Chronic sinusitus showed it's ugly side. Remember during the course of many endless consecutive months and the duration of just short of a year, all proved in vain with me taking numerous lengthly antibiotics. Nothing was helping! A long swab into the upper passage airways and the smear sent off for growth, proved conclusive. I had pseudomonas infection combined with a nasal MRSA infection. The answer lay in placing me on specific intravenous drug therapies using the ball decreasing medications at home. It took a while, but they finally got the invaders in check.

Latest Activity: August 14, 2017
L

Chronic sinusitus showed it's ugly side. Remember during the course of many endless consecutive months and the duration of just short of a year, all proved in vain with me taking numerous lengthly antibiotics. Nothing was helping! A long swab into the upper passage airways and the smear sent off for growth, proved conclusive. I had pseudomonas infection combined with a nasal MRSA infection. The answer lay in placing me on specific intravenous drug therapies using the ball decreasing medications at home. It took a while, but they finally got the invaders in check.

Latest Activity: August 14, 2017
L

Chronic sinusitus showed it's ugly side. Remember during the course of many endless consecutive months and the duration of just short of a year, all proved in vain with me taking numerous lengthly antibiotics. Nothing was helping! A long swab into the upper passage airways and the smear sent off for growth, proved conclusive. I had pseudomonas infection combined with a nasal MRSA infection. The answer lay in placing me on specific intravenous drug therapies using the ball decreasing medications at home. It took a while, but they finally got the invaders in check.

Latest Activity: August 14, 2017
L

Chronic sinusitus showed it's ugly side. Remember during the course of many endless consecutive months and the duration of just short of a year, all proved in vain with me taking numerous lengthly antibiotics. Nothing was helping! A long swab into the upper passage airways and the smear sent off for growth, proved conclusive. I had pseudomonas infection combined with a nasal MRSA infection. The answer lay in placing me on specific intravenous drug therapies using the ball decreasing medications at home. It took a while, but they finally got the invaders in check.

Latest Activity: August 14, 2017
L

Chronic sinusitus showed it's ugly side. Remember during the course of many endless consecutive months and the duration of just short of a year, all proved in vain with me taking numerous lengthly antibiotics. Nothing was helping! A long swab into the upper passage airways and the smear sent off for growth, proved conclusive. I had pseudomonas infection combined with a nasal MRSA infection. The answer lay in placing me on specific intravenous drug therapies using the ball decreasing medications at home. It took a while, but they finally got the invaders in check.

Latest Activity: August 14, 2017
L

Chronic sinusitus showed it's ugly side. Remember during the course of many endless consecutive months and the duration of just short of a year, all proved in vain with me taking numerous lengthly antibiotics. Nothing was helping! A long swab into the upper passage airways and the smear sent off for growth, proved conclusive. I had pseudomonas infection combined with a nasal MRSA infection. The answer lay in placing me on specific intravenous drug therapies using the ball decreasing medications at home. It took a while, but they finally got the invaders in check.

Latest Activity: August 14, 2017
L

Chronic sinusitus showed it's ugly side. Remember during the course of many endless consecutive months and the duration of just short of a year, all proved in vain with me taking numerous lengthly antibiotics. Nothing was helping! A long swab into the upper passage airways and the smear sent off for growth, proved conclusive. I had pseudomonas infection combined with a nasal MRSA infection. The answer lay in placing me on specific intravenous drug therapies using the ball decreasing medications at home. It took a while, but they finally got the invaders in check.

Latest Activity: August 14, 2017
L

Chronic sinusitus showed it's ugly side. Remember during the course of many endless consecutive months and the duration of just short of a year, all proved in vain with me taking numerous lengthly antibiotics. Nothing was helping! A long swab into the upper passage airways and the smear sent off for growth, proved conclusive. I had pseudomonas infection combined with a nasal MRSA infection. The answer lay in placing me on specific intravenous drug therapies using the ball decreasing medications at home. It took a while, but they finally got the invaders in check.

Latest Activity: August 14, 2017
L

Chronic sinusitus showed it's ugly side. Remember during the course of many endless consecutive months and the duration of just short of a year, all proved in vain with me taking numerous lengthly antibiotics. Nothing was helping! A long swab into the upper passage airways and the smear sent off for growth, proved conclusive. I had pseudomonas infection combined with a nasal MRSA infection. The answer lay in placing me on specific intravenous drug therapies using the ball decreasing medications at home. It took a while, but they finally got the invaders in check.

Latest Activity: August 14, 2017
L

Chronic sinusitus showed it's ugly side. Remember during the course of many endless consecutive months and the duration of just short of a year, all proved in vain with me taking numerous lengthly antibiotics. Nothing was helping! A long swab into the upper passage airways and the smear sent off for growth, proved conclusive. I had pseudomonas infection combined with a nasal MRSA infection. The answer lay in placing me on specific intravenous drug therapies using the ball decreasing medications at home. It took a while, but they finally got the invaders in check.

Latest Activity: August 14, 2017
L

Chronic sinusitus showed it's ugly side. Remember during the course of many endless consecutive months and the duration of just short of a year, all proved in vain with me taking numerous lengthly antibiotics. Nothing was helping! A long swab into the upper passage airways and the smear sent off for growth, proved conclusive. I had pseudomonas infection combined with a nasal MRSA infection. The answer lay in placing me on specific intravenous drug therapies using the ball decreasing medications at home. It took a while, but they finally got the invaders in check.

Latest Activity: August 14, 2017
L

Chronic sinusitus showed it's ugly side. Remember during the course of many endless consecutive months and the duration of just short of a year, all proved in vain with me taking numerous lengthly antibiotics. Nothing was helping! A long swab into the upper passage airways and the smear sent off for growth, proved conclusive. I had pseudomonas infection combined with a nasal MRSA infection. The answer lay in placing me on specific intravenous drug therapies using the ball decreasing medications at home. It took a while, but they finally got the invaders in check.

Latest Activity: August 14, 2017
L

Chronic sinusitus showed it's ugly side. Remember during the course of many endless consecutive months and the duration of just short of a year, all proved in vain with me taking numerous lengthly antibiotics. Nothing was helping! A long swab into the upper passage airways and the smear sent off for growth, proved conclusive. I had pseudomonas infection combined with a nasal MRSA infection. The answer lay in placing me on specific intravenous drug therapies using the ball decreasing medications at home. It took a while, but they finally got the invaders in check.

Latest Activity: August 14, 2017
L

Chronic sinusitus showed it's ugly side. Remember during the course of many endless consecutive months and the duration of just short of a year, all proved in vain with me taking numerous lengthly antibiotics. Nothing was helping! A long swab into the upper passage airways and the smear sent off for growth, proved conclusive. I had pseudomonas infection combined with a nasal MRSA infection. The answer lay in placing me on specific intravenous drug therapies using the ball decreasing medications at home. It took a while, but they finally got the invaders in check.

Latest Activity: August 14, 2017
L

Chronic sinusitus showed it's ugly side. Remember during the course of many endless consecutive months and the duration of just short of a year, all proved in vain with me taking numerous lengthly antibiotics. Nothing was helping! A long swab into the upper passage airways and the smear sent off for growth, proved conclusive. I had pseudomonas infection combined with a nasal MRSA infection. The answer lay in placing me on specific intravenous drug therapies using the ball decreasing medications at home. It took a while, but they finally got the invaders in check.

Latest Activity: August 14, 2017
L

Chronic sinusitus showed it's ugly side. Remember during the course of many endless consecutive months and the duration of just short of a year, all proved in vain with me taking numerous lengthly antibiotics. Nothing was helping! A long swab into the upper passage airways and the smear sent off for growth, proved conclusive. I had pseudomonas infection combined with a nasal MRSA infection. The answer lay in placing me on specific intravenous drug therapies using the ball decreasing medications at home. It took a while, but they finally got the invaders in check.

Latest Activity: August 14, 2017
L

Chronic sinusitus showed it's ugly side. Remember during the course of many endless consecutive months and the duration of just short of a year, all proved in vain with me taking numerous lengthly antibiotics. Nothing was helping! A long swab into the upper passage airways and the smear sent off for growth, proved conclusive. I had pseudomonas infection combined with a nasal MRSA infection. The answer lay in placing me on specific intravenous drug therapies using the ball decreasing medications at home. It took a while, but they finally got the invaders in check.

Latest Activity: August 14, 2017
m

Hi Sheila F. I would like to share some information about Pseudomonas that I get from an online bronchiectasis forum (www.bronchiectasis.info). Also I would like to say that pseudomonas is a common thing among bronchiectasis patient. I meet many people online in that forum who have pseudomonas.

Pseudomonas

Pseudomonas is a frequent cause of infection in patients with bronchiectasis. The bacterium almost never infects uncompromised tissues (healthy individuals/non bronchiectasis or CF people). This infection is a serious problem in patients with Bronchiectasis and Cystic Fibrosis.

The pseudomomas is an opportunistic pathogen, meaning that it exploits some break in the host defenses to initiate an infection. Once you have the pseudomonasit will always stay. Various different treatements are given to 'keep it at bay' and to try and prevent colonization.

In the respiratory system it has a mucoid appearance, which is attributed to the production of alginate slime. The smooth and mucoid colonies are presumed to play a role in colonization and virulence.

Pseudomonas is a Gram-negative, aerobic rod belonging to the bacterial family Pseudomonadaceae. The family includes other genera, which, together with certain other organisms, constitute the bacteria informally known as pseudomonads.

Pseudomonas is notorious for its resistance to antibiotics and is, therefore, a particularly dangerous and dreaded pathogen. The bacterium is naturally resistant to many antibiotics due to the permeabiliity barrier afforded by its outer membrane LPS. Also, its tendency to colonize surfaces in a biofilm form makes the cells impervious to therapeutic concentrations antibiotics.

Only a few antibiotics are effective against Pseudomonas, including Fluoroquinolones, Gentamicin and Imipenem, and even these antibiotics are not effective against all strains.

Most Pseudomonas infections are both invasive and toxinogenic. The ultimate Pseudomonas infection may be seen as composed of three distinct stages: (1) bacterial attachment and colonization; (2) local invasion; (3) disseminated systemic disease. However, the disease process may stop at any stage. Particular bacterial determinants of virulence mediate each of these stages and are ultimately responsible for the characteristic syndromes that accompany the disease.

Latest Activity: August 15, 2017
20

Comments

m

Sorry if there are too much information. Have a good day today.

Latest Activity: August 15, 2017
5
K

Made,
You can never have too much information re: your own health.:))
Here is another site on Pseudomonas
http://www.healthline.com/health/pseudomonas-infections

Shelia,
It is so very important to treat pseudomonas in order to avoid damage to your airways.
I was on tobramycin inhalation years ago for approximately 30 days if I recall correctly.
I hope that you start feeling better soon.

Latest Activity: August 15, 2017
6
A

@Ksmiles123 Did the tobramycin inhalation for 30 days take care of the infection? Did the infection come back after the treatment?

Latest Activity: November 6, 2017
4
M

Made, thank you for that information, never too much :-) I have colonization 4+ and when I asked my doc 'how much is 4+ he said "they stop counting after 4" ... Ugh ... thus a LOT. I was prescribed Tobrimycin but ended up not using it because I simply could not afford it, I'm Medicare age at 73 and it would have put me in the 'coverage gap' straight away. For now i'm doing pretty good, fortunately I have a daily event around midday towards 2 pm when the nasty stuff comes loose and I can easily cough it out. That's a great blessing, because I can sort of maintain keeping free of phlegm build-up ... my pulmonary doc advised that my goal needs to be to maintain pulmonary 'hygiene' ... My main diagnosis is the bronchiectasis with NTM aka MAC ... Yes, you put it well when you wrote that Pseudomonas is an "opportunistic" disease ... one's defenses get down, it kicks into higher gear :-(

Latest Activity: April 23, 2018
5
L

Modjadje, yes, that is a great blessing that you can keep Pseudomonas at bay without taking antibiotics. Pseudomonas is a nasty piece of work. I have it and it looks like I'll have it until the end. I hope it doesn't make the end come sooner. I actually have been NTM free for 6 years (fingers crossed), but Pseudomonas moved in right after I was celebrating ridding myself of MAC. I am fighting the Pseudomonas with daily 10% saline nebulizing plus I inhale 2 antibiotics, alternating: Tobramycin then Colistin. I can go 2 weeks without the antibiotics but any longer than that gives the Pseudomonas a figurative leg up. My daily treatment takes from 1-2 hours and it is exhausting. I was hoping the FDA would approve the inhaled drug for treating bronchiectasis/pseudomonas.

Latest Activity: August 4, 2018
4
G

Hi,
I recently found an alternative to inhaled Tobramycin that works! Medicare wouldnt cover the tobramycin, so somewhere along the line of communications Gentamycin was substituted...evidently they are same category, and def affordable..be sure to also get syringes to get it out of the vial and into the nebulizer, and saline to dilute it with..the latter 2 items werent covered or ordered with it when the substitution was made...I used once a day for 28 days and the nasty "pseudocrud " is not erupting! This is longest stretch betwen pneumonias I have had in over2 years! (68 days🤗) keep on fighting!!

Latest Activity: April 17, 2019
3
K

Hello! You have a lot of challenges to deal with.

Some NTM patients are borderline CF; others have CF. Not all patients w pseudomonas have CF. The chances of getting pseudomonas and many other respiratory infections increases after you have had a NTM infection.

I wish you the best getting pancreatitis under control.

Please keep us posted on your progress


Latest Activity: April 23, 2018
11
Q

I was diagnosed with pseudomonas about 14 years ago and was treated with IV antibiotics for 11 days and also a nebulizer for 5 treatments.....$600 for just the nebulizer as it was made in a compounding pharmacy. I did cure it.

Pseudomonas is a very common bacteria that is found in very many places and is around us almost all the time. I think, my opinion, that it takes hold in us when our immune system is vulnerable and can cause a great deal of misery in the lungs. Mine was treated at the Infectious Disease Center in my town.

Latest Activity: June 5, 2018
6
K

Quizze,

Yes, you can feel better after the right treatment for pseudomonas is complete ; there is HOPE

Latest Activity: June 6, 2018
6
D

I also have been diagnosed with Pseudomonas but am able to keep it under control with daily regiment of inhaling a 7 % saline solution with an Aerobika while using a vibrating vest. My pulmonologist describes it as creating an environment that the pseudomonas do not like. It has kept me from using and antibiotic.

Latest Activity: June 13, 2018
5
K

Dee,

Anything that will lessen the chance of infection and staying off antibiotics is a huge gift!!! Thank you for sharing your words.:

Latest Activity: June 14, 2018
6
K

Modjadje,

Hello! Did you look on the Novartis website for assistance with tobramycin? They do offer a special assistance program.

Please let us know the outcome.


Latest Activity: August 5, 2018
7
l

I had pseudonomas. I coughed fir months and months. In March 2017, I had pleural effusion. Continued coughing, diagnosed with pneumonia June 2017. In October was 2 days from having sinus surgery, did a xray ( clear), ct-scan...still had pneumonia. Both times, 1st put on levofloxin (1 week) 750mg, 2nd levofloxin (2 weeks). Months later did sputum, had pseudomonas.

Levofloxin caused me now to need rotator cuff surgery due to a tear. Never had problems before. After each time on levofloxin, I had muscle pain, hard to walk, many commented on how I walked.


Latest Activity: August 9, 2018
6
K

Hello! So sorry to hear about your adverse effects. There are many different adverse effects from levaquin

The most common one is tendonitis.

I have experienced tendonitis in my knee several times; it can be extremely painful.

I ha e not yet heard of issues with nail beds. Let’s see how others respond.

https://www.drugs.com/sfx/levaquin-side-effects.html

Latest Activity: August 9, 2018
3
K

There are black box warnings on the group levofloxin I have told pulmo and mds so many times they just keep prescribing it.

Latest Activity: August 10, 2018
4
K

Kandy,

Did you read my recent post about fluroquinolones causing depression

Latest Activity: August 10, 2018
3
M

I agree that Levofloxacin is a bear. Thankfully I didn't have a tendon tear, but the joint pain was not fun. Probably good I didn't know about the depression and hypoglycemia during the 15 months I took it!

Latest Activity: September 19, 2018
8
K

Gladys,

Hello! So happy to read your post. Yes, onecdrug May work for one person and not be effective for the next. I am just so happy to hear that this drug is working for you that you are feeling better

Latest Activity: April 18, 2019
3
n

I have ongoing Psuedomonas , it has colonized in my lungs , No one knows how long it has been in my lungs. For now it is being kept in check with Tobramycin 300mg 2 x a day every other 28 days.

Latest Activity: April 22, 2019
8

Comments

n

I for got to add that the tobra I use is nebulized . And I hope that it is working . I can only hope

Latest Activity: April 23, 2019

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