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What is your daily routine? Lifestyle issues.

In: General Discussion
27 3747
T

This is my daily routine. What is yours?

Upon waking.......... Coughing and expelling mucous/phlegm for 40 minutes (average) in order to clear my airway passages. On bad days I can go for 60 minutes and my wife will help me by doing persuasion treatments on my back to help loosen the build up. I take 10 ml of gaufenesin liquid each morning to help loosen the build up.

During the day........... Constant clearing of the throat and expelling mucous on tissues. I have to have tissues near me or with me at all times so that I do not suppress the mucous. I use about 50 to 75 tissues each day. I buy tissue that is very cheap and by the case. I find that the more expensive ones simply have a whole lot more paper dust in them to make them soft and breathing that dust is no good for anyone.

At bed time......... Another dose of gaufenesin and then while reading or watching TV I usually cough up mucous for at least 20 minutes. I think it has something to do with what is referred to as postural drainage, meaning for me the change to a laying position from standing causes the coughing to begin. I usually go through about 10 to 15 tissues while settling down to go to sleep.

While there is a whole bunch more I could add, I think you get the picture. I've had bronchiectasis diagnosed since 1979 and as the years have gone by it has indeed got worse. I am retired now (67 years old), but it never cramped my style during my working years. (Other than having so many people ask if I have a cold so often.)

I wonder what others days/nights are like? I hope some of you will share.

Thanks, and God Bless.

Latest Activity: September 1, 2016
13
27 Replies

Replies

K

Getting up head for bathroom to get pills, theophylline and generic zertec then to get my insulin done. I then do my neb treatment of brovana and a while later 7% hypertonic saline if needed. I may shower inbetween the meds followed by budesonide neb. A while later I do sprivia inhaler and followed by flovent. If a mid day neb treatment is needed I have levelabuterol neb which is generic xopenex. I do cough some but lately nothing comes up seems a dry hacky cough. Wondering about that. Not bad but comes with the territory I guess.

Same for night before bed but no spiriva inhaler. Best get started the night nebs. Good night!!!

Latest Activity: July 28, 2016
11
m

Hello, here is my current daily routine for now :)

I go to a community health center in the morning to get a streptomycin injection. I am on TB medication regiment 2nd category. After that I will go to a park which is located close to the health center. I will have a walking probably for 20 minutes. Then I will go back to home. After that I usually do yoga to help me release mucus.

I've been stayed at home for about a month, and not going to the college. I wasn't motivated to study. However today I just finished an exam. The exam went well. I study medicine in there :)

I cough all day. It feel much better when I cough and release the mucus. I will buy a nebulizer to have the saline therapy, can't wait to try it.

I've been diagnosed for two and a half years. I have learned many things from having bronchiectasis. I want to enjoy life despite having this disease. Cheers! :)

Latest Activity: July 29, 2016
12

Comments

B
NULL
Latest Activity: August 2, 2016
4
m

Hello BreathFree thank you for sharing this to me! It gives me spirit and strength.
I agree with the coughing and the exercise. Coughing makes me feel better. I also drink water a lot, it really helps.
Great job on your exercise. It's great to know about your exercise on daily basis and also how you keep moving and active. I will keep exercise. "every lap is one more day of my life."
I also love about how you do your job and do daily activities despite having bronchiectasis. I believe that you love your job, and other things that you love give you power to live. I want to make my life meaningful and also give back to other people. I can't control the disease but I control my attitude. I will keep learning. Thank you!

Latest Activity: August 3, 2016
5
G

@BreatheFree Thank you for sharing. I love your thoughts on remembering it is temporary and we must not sacrifice the life we want! We could all remember that learning to rise above whatever ails us or consumes us is a practice.

Latest Activity: August 3, 2016
4
M

"it isn't a character flaw to need extra help when you are extra stressed"---well put BreatheFree and I'm glad you took your own advice. :-) Chronic disease is often as hard on our minds as it is on our bodies.

Latest Activity: August 3, 2016
4
B

Having a goal and a project bigger than your symptoms keeps you moving forward. Besides...it is awfully boring staring at the sink to cough and spit! I sometimes use the kitchen sink, because it has a better view than the mirror!!!! But I maintain super hygiene, and am not contagious. Keep up the good work in medicine. Physicians who have chronic disease live longer, and can help their patients more, when they are engaged in helping others. It boosts our immune system. But choose a "clean specialty" so you don't get all the clinic bugs. I worked in OB/GYN for many years. Less virus exposure!

Latest Activity: September 2, 2016
3
m

Hi BreathFree, nice to see you.
Yes I agree, there's much more in this life than the symptoms. I need to make goal and do things to make me move foward. :)

Latest Activity: September 2, 2016
2
m

Hello Tim, it's great that you can do your work while having bronchiectasis. It's a inspiration for me :)

Latest Activity: July 29, 2016
m

Hello Tim, it's great that you can do your work while having bronchiectasis. It's a inspiration for me :)

Latest Activity: July 29, 2016
m

Hello Tim, it's great that you can do your work while having bronchiectasis. It's a inspiration for me :)

Latest Activity: July 29, 2016
m

Hello Tim, it's great that you can do your work while having bronchiectasis. It's a inspiration for me :)

Latest Activity: July 29, 2016
T

I know you can do it, Made. I learned how to manage my disease so that I could function normally in a work environment. Once you know your disease and it's cycles as it affects your day, it becomes easier. If I could change one thing about how I dealt with the symptoms and effects of the disease it would be to be much more cautious about being exposed to dust, fumes, smoke, chemicals, paint, etc. than I was when I was much younger. Those things cause irritation, inflammation, and basically put you into jeopardy for increased exacerbations with bleeding. I learned to stay away as much as I could from these things, or to wear protective devices (dust mask, vapor mask) to make sure the exposure was minimized.

Latest Activity: July 30, 2016
T

I know you can do it, Made. I learned how to manage my disease so that I could function normally in a work environment. Once you know your disease and it's cycles as it affects your day, it becomes easier. If I could change one thing about how I dealt with the symptoms and effects of the disease it would be to be much more cautious about being exposed to dust, fumes, smoke, chemicals, paint, etc. than I was when I was much younger. Those things cause irritation, inflammation, and basically put you into jeopardy for increased exacerbations with bleeding. I learned to stay away as much as I could from these things, or to wear protective devices (dust mask, vapor mask) to make sure the exposure was minimized.

Latest Activity: July 30, 2016
T

I know you can do it, Made. I learned how to manage my disease so that I could function normally in a work environment. Once you know your disease and it's cycles as it affects your day, it becomes easier. If I could change one thing about how I dealt with the symptoms and effects of the disease it would be to be much more cautious about being exposed to dust, fumes, smoke, chemicals, paint, etc. than I was when I was much younger. Those things cause irritation, inflammation, and basically put you into jeopardy for increased exacerbations with bleeding. I learned to stay away as much as I could from these things, or to wear protective devices (dust mask, vapor mask) to make sure the exposure was minimized.

Latest Activity: July 30, 2016
T

I know you can do it, Made. I learned how to manage my disease so that I could function normally in a work environment. Once you know your disease and it's cycles as it affects your day, it becomes easier. If I could change one thing about how I dealt with the symptoms and effects of the disease it would be to be much more cautious about being exposed to dust, fumes, smoke, chemicals, paint, etc. than I was when I was much younger. Those things cause irritation, inflammation, and basically put you into jeopardy for increased exacerbations with bleeding. I learned to stay away as much as I could from these things, or to wear protective devices (dust mask, vapor mask) to make sure the exposure was minimized.

Latest Activity: July 30, 2016
m

Hello Tim, thank you. I am doing my best and keep learning on managing myself and bronchiectasis :)

Latest Activity: July 30, 2016
m

Hello Tim, thank you. I am doing my best and keep learning on managing myself and bronchiectasis :)

Latest Activity: July 30, 2016
m

Hello Tim, thank you. I am doing my best and keep learning on managing myself and bronchiectasis :)

Latest Activity: July 30, 2016
m

Hello Tim, thank you. I am doing my best and keep learning on managing myself and bronchiectasis :)

Latest Activity: July 30, 2016
K

Hello Tim that is along time with bronchiectasis. I was just diagnosed 2 yrs ago and it got worse Oct of 15 but I don't have as much mucus as you do. I do 7% hypertonic that is the best. It helps me more than anything else does. I also get zpak 3 times a week only thing that helps control the inflammation as not on pred my pulmo rather do it this way with budesonide than pred. Sounds like your on top of keep it up.

Latest Activity: July 31, 2016
K

Hello Tim that is along time with bronchiectasis. I was just diagnosed 2 yrs ago and it got worse Oct of 15 but I don't have as much mucus as you do. I do 7% hypertonic that is the best. It helps me more than anything else does. I also get zpak 3 times a week only thing that helps control the inflammation as not on pred my pulmo rather do it this way with budesonide than pred. Sounds like your on top of keep it up.

Latest Activity: July 31, 2016
K

Hello Tim that is along time with bronchiectasis. I was just diagnosed 2 yrs ago and it got worse Oct of 15 but I don't have as much mucus as you do. I do 7% hypertonic that is the best. It helps me more than anything else does. I also get zpak 3 times a week only thing that helps control the inflammation as not on pred my pulmo rather do it this way with budesonide than pred. Sounds like your on top of keep it up.

Latest Activity: July 31, 2016
K

Hello Tim that is along time with bronchiectasis. I was just diagnosed 2 yrs ago and it got worse Oct of 15 but I don't have as much mucus as you do. I do 7% hypertonic that is the best. It helps me more than anything else does. I also get zpak 3 times a week only thing that helps control the inflammation as not on pred my pulmo rather do it this way with budesonide than pred. Sounds like your on top of keep it up.

Latest Activity: July 31, 2016
T

@Kandy Try taking cinnamon capsules for the inflammation. It's a natural anti-inflammatory and it works for me to keep my inflammation down to a minimum. Good luck and God Bless.

Latest Activity: July 31, 2016
T

@Kandy Try taking cinnamon capsules for the inflammation. It's a natural anti-inflammatory and it works for me to keep my inflammation down to a minimum. Good luck and God Bless.

Latest Activity: July 31, 2016
T

@Kandy Try taking cinnamon capsules for the inflammation. It's a natural anti-inflammatory and it works for me to keep my inflammation down to a minimum. Good luck and God Bless.

Latest Activity: July 31, 2016
T

@Kandy Try taking cinnamon capsules for the inflammation. It's a natural anti-inflammatory and it works for me to keep my inflammation down to a minimum. Good luck and God Bless.

Latest Activity: July 31, 2016
K

Thanks Tim for the idea!

Latest Activity: August 1, 2016
K

Thanks Tim for the idea!

Latest Activity: August 1, 2016
K

Thanks Tim for the idea!

Latest Activity: August 1, 2016
K

Thanks Tim for the idea!

Latest Activity: August 1, 2016
C

Bronchiectasis with Pseudomonas Aerginosa

daily twice a day I inhale Advair 500/50, irrigate with saline, inhale albuterol and then nebulize 7% saline. Because I have pseudomonas in both sinuses and lungs, I use a mask to attach neb kit to and I wear eye goggles, Aqua Sphere Seal XP transparent to protect my eyes from saline and antibiotics. Following with every two weeks for 14 days TOBI for 14 days. I use a heavy duty Nebulizer compressor since using it for 45+ Minutes BID, the regular compressors start running slower and slower until I am spending 2 hours a day doing treatment. I use Pari VIOS Pro compressor. Nebology.com sells it and all equipment.

Then I use Aerobika or positive huff breathing

Latest Activity: September 1, 2016
12

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