Discussions
Discussions
BE and LPR
Just joined this group. I was diagnosed with BE a couple of years ago during a hospital stay for pneumonia. That year, I had about 4 bouts of pneumonia which I think contributed to my diagnosis. Prior to that I had coughing when i changed positions in bed or when I had a cold. I was having lots of coughing and throat clearing at the time of my pneumonias. I think I have silent reflux, which makes it difficult to manage my BE. I’m starting to watch my diet a little more, taking reflux gourmet at night when I need it, and doing hypertonic 3% nebs twice a day. Any suggestions how to manage both issues? I’m 70, 4 grandkids and am pretty active. Thanks.
Replies
SusuG,
Hello! Welcome to the community. Have you been doing regular airway clearance? Do you have an aerobica or Acapella device?
Are you staying with an anti reflux diet? Is your heading bed elevated at least 30 degree angle?
Below is a link to Basic Nutrition for BNTM patients . Let us know if you have any questions. https://www.bronchandntm.org/For-Patients/Learn-More/Managing-Symptoms-and-Daily-Living/Nutrition
Comments
SusuG,
Below is a link to Basic Nutrition for BNTM patients . Let us know if you have any questions. https://www.bronchandntm.org/For-Patients/Learn-More/Managing-Symptoms-and-Daily-Living/Nutrition
Hi SusuG.
Great question! We definitely want you to feel your best with grand kids and an active lifestyle!
I think Katie is on the right track of suggesting that you avoid foods that may cause increased acid and elevating the head of you bed a bit. I would also recommend (in addition to taking an acid reducer - very common prescription with this diagnosis) that you avoid eating late in the evening. Aim for early dinner times and avoid acidic beverages when watching TV/movies or lounging at night. For instance, I LOVE sparkling water but between the fizz and the acidity of most sparkling water, I found that I had more acid at night. You would be surprised what can flare acid up!
If you try any of these tips and they work for you, please report back. We want our community to share and support, and often, the best recommendations come from our community!
I would also recommend making sure you have a good airway clearance routine in place. Once you have a routine, it is usually best to wait about two hours after eating to perform your therapy, or to do it before meals, to help reduce the chance of acid reflux.
Do you currently work with a bronchiectasis specialist? If you are having frequent pneumonias, I hope your team is sending sputum samples to the lab so they know exactly which bacteria are present and can target them with the right antibiotics, and also to check for any NTM infection.
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