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In: General Discussion
3 10
S

I have Bronchiectasis & MAC. My pulmonologist ran an Immunity Blood Panel & it came back with my IgG subclasses low. He recommended trying Plasma Infusions & sent me to an Immunologist. I have has 5 Infusions of Octagam & so far they have made me feel really sick. 

Has anyone else had any experience with this? 

Latest Activity: 25 minutes ago
3 Replies

Replies

K

Susanm,

Hello! I have not had the infusions but I assume that your healthcare provider feels the benefits outweigh any risks. Have you inquired about any medication that can assist you to deal with the negative effects? 

Latest Activity: 1 hour ago
S

They don’t do that they adjust the medication. Change dose, change suppliers, slow down Infusion. 

I would like to hear from someone that had done or tried these.

Thank You

Latest Activity: 26 minutes ago
Lucinda

Hi Susanm,
I have not had this particular medication infusion, but had a different one over a long period time that did the same to me. My nurse slowed down the infusion rate and helped me tremendously. You might ask you nurse or health care provider if this is a possibility. 

Latest Activity: 25 minutes ago

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with Bronchiectasis and NTM, please consult a physician before making changes to your own Bronchiectasis and NTM management plan.

Community posts are monitored by the 360social Community Manager, as well as staff respiratory therapists, educators, and other medical professionals.

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