Discussions
Discussions
Bronchiectasis and NTM Research Registry
What is the Bronchiectasis and NTM Research Registry? Is it the same as this online community? Is it something I should be a part of?
Replies
Hi Laura,
The Bronchiectasis and NTM Research Registry is a database of individuals (in the U.S.) with Non-CF Bronchiectasis and/or NTM lung disease. Individuals enrolled in the Registry consent to have their medical data collected for research purposes. Most individuals who enroll in the Registry also consent to be contacted for participation in research studies and clinical trials. The data collected in the Registry is confidential and only accessible by the COPD Foundation and the Bronchiectasis Research Consortium. To learn more about the Registry, including how to enroll, you can click on the Bronchiectasis and NTM Research Registry page under the Research tab of this website. I've also provided the direct link below.
https://www.bronchiectasisandntminitiative.org/Res...
It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.
Community posts are monitored by the 360social Community Manager, as well as staff respiratory therapists, educators, and other medical professionals.