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Discussions
National Advocacy Day
Hello! National Patient Advocacy Day was on August 19th. Patient advocacy is a key function in the healthcare system that focuses on advocating for patients, and caregivers. In the United States, patient advocacy became prominent in the 1950s, with cancer research and treatment.
As the Patient Rights movement grew in the United States, the 1970s were a pivotal period for patient activism. An example of this activism is the American Hospital Association’s Patient Bill of Rights. Individual patient advocacy gained traction in the United States in the early 2000s.
The COPDF and the BNTM Association organizes an event, known as Impact that is held every March in Washington, DC. Meeting with your legislators on Capitol Hill is truly a great experience. Below is a link for more information on Impact Day, including the priority requests that have been made since 2019. https://www.copdfoundation.org/Take-Action/Get-Involved/IMPACT-Lung-Health.aspx
Please let us know if you have any questions. This event offers the opportunity of taking action to assist in moving research and the development of new drugs and treatments forward. Contact information is included in the link above if you are interested in getting involved. :)
Replies
Hello! An additional link for you to get involved in advocacy efforts for bronchiectasis and NTM patients. I hope that you will consider taking action to make an impact on the lives of each and every patient in this community.
You can join the COPD Foundation in calling on our lawmakers to protect scientific research. Use this link to urge them to take action now! https://www.votervoice.net/COPD/campaigns/137619/respond
It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.
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