Discussions

Not sure if I want treatment

June 7, 2026

1 42

I have 3 strains of M. abcessuss (however it’s spelled) and MAC. Started in 2022, it took this long 2 find someone 2 actually want to treat it now. I have it in both lungs. I am 57, no energy & treatment includes Biaxin, Neuzyra and I.V. of Amikcin. I’m scared to put my body thru more upset & knowing I can lose hearing which is the only thing I have left. Of course the dr isn’t gonna tell or predict what’s gonna happen I wanted to know the side effects of these meds and if possible any outcomes with anyone with same affliction

Latest Activity: 15 hours ago

Replies

Ksmiles123

Kelly,

Hello! I am sorry that you are dealing with such challenges. The uncertainty of treatment side effects can be overwhelming, to say the least.

We have assistance available for you in many forms. In addition to the community support you receive here on BronchiectasisandNTM360, you can call one of our Patient Ambassadors directly by phone at (833) 411-5864. Our Ambassadors are real live patients with experiences similar to yours and understand your concerns. You can also email us at contactus@bronchandntm.orgto get more information on any specific questions on other specific questions on medications you may have. Our Ambassadors can’t provide medical advice but may be able to assist you with additional resources.
We are having our monthly Coffee Break , on zoom , with the topic is Medications on this coming Wednesday,6/10 at 230pm. Please scroll below to read the Coffee Break announcement. Are you available to join us?

Latest Activity: 15 hours ago

Comments

Ksmiles123

Joining us this month is Dr. Ahmed Hamdi, MD, AAHIVS, Assistant Professor of Medicine at the Baylor College of Medicine (BCM) to present medications for BNTM patients.

Dr. Hamdi is the Co-Director of the BCM Non-tuberculous Mycobacterial Diseases Program.

The meeting registration link is here:

https://us06web.zoom.us/meeting/register/tZclcuusrDMpG9PrF3BDUA2nw2csTkQsg7EG#/registration

Latest Activity: 15 hours ago

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