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The 3 medications

In: Treatments & Medications
7 198
G

I am new to this diagnosis and would love to see how many usually do the medications and what can you suggest for nutrition tips?  Any information or places to look on this site would be appreciated.  I have not watched all the educational resources yet.  Thank you!

Latest Activity: June 26, 2026
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7 Replies

Replies

K

Gale C,

Hello! Welcome to the community. Regarding medications- do you have Bronchiectasis, NTM or both? 

Latest Activity: June 26, 2026
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Comments

K

Below is a link on nutrition. https://www.bronchandntm.org/For-Patients/Learn-More/Managing-Symptoms-and-Daily-Living/Nutrition

We will be hosting a special webinar for World Bronchiectasis Day next week, link is below. I hope that you can join us. https://social.bronchandntm.org/events/4

Latest Activity: June 26, 2026
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G

Both.  I was diagnosed with Bronchiectasis in 2012 after my first bout of pneumonia, and I have done great on only inhalers. I worked (and just retired) in an elementary school so caught many germs which has had me having pneumonia 3 times since 2012, but we usually caught it quickly.  My MAC diagnosis was surprising since I had been doing great but it appears my fatigue and weight loss this school year was not being 65 years old.  I got very ill in April and it ended up being MAC.  I am extremely allergic to many antibiotics, etc and am anxious by nature. I really do trust my pulmonologist. I know knowledge helps me to process things. Thanks for reading!

Latest Activity: June 26, 2026
5
K

GaleC,

You are most welcome. I assume that your Pulmonologist is watching/ monitoring and waiting before prescribing multiple antibiotics since you mentioned that you have difficulty with these drugs. Do you have any specific question about a particular drug? We are here to support you. 

Latest Activity: June 26, 2026
5
G

Because of how sick I got , my scan and results of bronchoscopy he is starting me on the 3 medications, one very few weeks. I started the first one last week. 

Latest Activity: June 26, 2026
5
K

Gale,

Hello! It is best practice to start one pill at a time to note any side effects. I recently posted information on these drugs ; if you scroll through the activity feed over the past few weeks you’ll find them. I hope that things go smoothly for you. Let me know if you have any specific questions. 

Latest Activity: June 26, 2026
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G

Thank. I found them to read. Is it possible to assume that most people here eventually need medication for MAC?


Latest Activity: June 26, 2026
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K

 Doctors are watching, monitoring patients for a period of time to observe their symptoms, checking any changes on cat scan, seeing if airway clearance is effective before prescribing multiple antibiotics. I don’t have any exact numbers on how many do not get placed on medications, but more monitoring is being done now than in the past. Ongoing research on this subject is being conducted. 

We have assistance available in many forms. In addition to the community support you receive here on BronchiectasisandNTM360, you can call one of our Patient Ambassadors directly by phone at (833) 411-5864. Our Ambassadors are real live patients with experiences similar to yours and understand  your concerns. You can also email us at contactus@bronchandntm.orgto get more information on any specific questions you may have.  Our Ambassadors can’t provide medical advice but may be able to assist you with additional resources. 
Latest Activity: June 26, 2026
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It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.

Community posts are monitored by the 360social Community Manager, as well as staff respiratory therapists, educators, and other medical professionals.

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