Discussions
Discussions
New here, looking for guidance and shared experiences
Hello everyone,
I'm new to the Bronchiectasis & NTM community and wanted to introduce myself. I have recently started learning more about bronchiectasis and NTM and I’m here to better understand the condition, treatment options and day to day management.
I’m especially interested in hearing about others’ experiences,what has helped you manage symptoms, any tips for maintaining lung health and how you navigate treatments or lifestyle changes.
It can feel overwhelming at first so I am really glad to have found a space like this where people share knowledge and support one another. I’m looking forward to learning from you all and contributing where I can.
Thank you in advance for any guidance or advice!
Best regards,
wajo23
Replies
Wajo,
Hello! Welcome to the community. We have plenty of great information for you. It may take some time to make lifestyle changes, adjustments but it is possible with some support. Below is a link for newly diagnosed patients and other links will follow. Please let us know if you have any specific questions.
https://www.bronchandntm.org/For-Patients/Learn-More/Diagnoses-and-Evaluation/Newly-Diagnosed
Comments
Welcome wajo23........Airway Clearance is key for me
---23-we must be related!!!😀
Hi das23, thank you for the warm welcome! 😊 I really appreciate your insight—I've been hearing that airway clearance is very important, so it’s helpful to know it works well for you. I’ll definitely look more into that. And yes haha, maybe we are related!
Hi wajo23. We are glad you found our community. We offer monthly "Coffee Break" meetups that may be beneficial for connecting with others. Also, we have an information line where you can connect to our Ambassador and Coaching Team that can give excellent feedback to your most burning questions. There is loads of helpful information on this website, but it can be overwhelming. Take things a day at a time and if we can clarify anything, give us a call! 😊
Welcome, Wajo23! You are in the right place for education and community.
I know several people have already shared some of our resources, but if you are looking for a way to hear from both experts and people living with bronchiectasis, I also recommend checking out our podcast. We release one new episode each month.
If you are interested in a specific topic, please reach out. I would be happy to help and can add your suggestion to my list of future podcast topics. Alyssa@bronchandNTM.org
https://www.bronchiectasisandntminitiative.org/Lea...
It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.
Community posts are monitored by the 360social Community Manager, as well as staff respiratory therapists, educators, and other medical professionals.