Discussions
Discussions
Treatments & Medications
My pulmonologist asked me which one I wanted, like I have a clue. Doing research & could use some feedback from anyone willing to chime in. I’m 64”106# & would like to be mobile with it.
Most of us enjoy being outdoors, sitting in the sunshine throughout the summer months. However, we must be cautious while taking certain medications. Tge article below reviews the categories of medications that are most “ sun sensitive “,: https://www.goodrx.com/health-topic/dermatology/avoid-the-sun-if-you-take-these-drugs
I have Bronchiectasis due to Ulcerative Colitis(IBD). I am considering using a biologic agent (Stalera, Remicade, etc) as a possible treatment for the IBD/Bronchiectasis. I am curious if anyone on this board has IBD as a cause of their Bronchiectasis, and if they have considered biologics as a treatment option? thanks in advance
Hi everyone. I found this question on an online bronchiectasis forum that I follow and I would like to know your experience about "when to start antibiotic".
When do you start antibiotics? How do you know if you have exacerbation? What is the antibiotic that you use during exacerbation?
Have a good day today :)
Bob I tried to get my pulmo to give me the Tobramycin but all he said its expensive and your insurance wont pay for it so he gave me zpak to take 3 times a week.
I been wondering about these two you can neb gentomicin and tobramycin I am asking my pulmo when I see him in June. Was told that you have to prove a bacteria by sputum is that true do you know for sure? There is a study out now that they are working on inhaled antibiotics for bronchiectasis. I keep watching for anything for this lung disease. I am taking zpak 3 times a week now but its not clearing up but keeping it stable I guess.
What are the most common medications currently being used to treat NTM, and the side effects associated with each one.
Recently had to stop iv amikacin due to hearing loss. Still on rifampin and azythromycin. Waiting for bedaquilline which was approved by pharmaceutical co., Sirturo.
Any side effects, efficacy of drug?
I have had bronchiectasis and NTM for several years, and I would like to know the effects specifically of bronchiectasis on the lungs.
It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with Bronchiectasis and NTM, please consult a physician before making changes to your own Bronchiectasis and NTM management plan.
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