Discussions

Hello,

I am just starting the 3 drug regimen and wondering if anyone is aware of financial assistance for Rifabutin as of 2023 Pfizer discontinued the patient assistance program for Mycobutin most of the discount card resources come out about the same; $220./month

Thank yo

Are you a new patient dealing with acid reflux? The blog article below offers some tips:https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/47/The-Basics-of-Acid-Reflux

Wabi steam sanitizer & dryer. Has anyone used it for Phillips Innospire Go Mouthpiece? I use it on my Aerobika and other nebulizer pieces. I contacted Phillips and have not received an answer to date. Thanks for any info!

https://www.verywellhealth.com/diffusing-capacity-of-the-lungs-2249024

Do you understand all of the terms used by your pulmonologist? The link below reviews the most common terms used:https://www.bronchiectasisandntminitiative.org/Learn-More/Learn-More/Glossary

Have you recently been diagnosed with NTM, Bronchiectasis or both? Do you have a specific question?

Is the flu widely spreading in your area? https://symptoms.webmd.com/cold-flu-map/default.htm?ecd=wnl_spr_121922&ctr=wnl-spr-121922_lead_title&mb=BV9hlHMDfjVlJNmGRIb%40PxXFE73IOX1cnRFKG4M8oE4%3D

Do you want to learn more about reducing exposure to NTM? The video below offers some great recommendations: https://m.youtube.com/watch?v=bRyoYXthxH4

https://bronchiectasis.com.au/bronchiectasis/diagnosis-2/lung-function

My chimney's immune system is weak due to smoking, and now it has the flue.

Hello from Australia. My wife has been to see her doctor, who has recommended a course of three antibiotics to treat her NTM. The doc says that the treatment might have to be for 6 months to a year or perhaps longer. She has been informed about possible side effects and is now deciding whether to start the treatment. She's 66. Any thoughts, particularly from Aussie patients?

I have noticed that weather seems to affect how I feel. Does anyone have any tips on how to manage the coming winter?

Inhale colistin using a nebulizer

Can someone tell me about the local support groups that I have seen on this site.

I do airway clearance every day using 3% (just started using 7%) hypertonic saline….once in the morning and once late afternoon. I also use the Aerobika after I nebulize the saline. I also take the Big 3 antibiotics 3 days a week even though my last sputum culture was negative for MAC. I also use Albuterol when needed. Within the past week I have not been expelling a significant amount of sputum. Some days there is hardly any mucus. Should I be concerned or is the daily use of airway clearance having an impact?

Hi All. This question was placed in the activity feed by a community member, and I didn't want it to get missed. :)

What affect does the moisture settings on CPAP device have on bronchiectasis? Does anyone use a certain type of water to fill their CPAP humidifier? Do you worry that the humidifier could affect your bronchiectasis?

The reason I had one a few years ago as kept getting sick so they decided to do one see what bugs where in my lungs. Came up as normal flora. They only grew the sample in the lab 3 days I wonder if that was long enough.

I am 74. What would a bronschoscopy gain for me?

Who amongst the bloggers has had a Bronchoscopy and what did the results gain for you?

Who amongst the bloggers has had a Bronchoscopy and what did the results gain for you?

When is the best time to nebulize with sodium chloride? I have been using 3% saline twice a day....usually before meals. I plan on going out to dinner over the long holiday weekend and I am not sure if I should nebulize before or after dinner. Does anyone ever enjoy a glass of wine with bronchiectasis? Thank you!

I have been taking Arikcase for 4 months. Today I am coughing up small amounts of blood. should I suspend my use of Arikcase?

I saw my Infectious Disease doctor yesterday following up on my most recent sputum culture done in early April and it was negative for Mycobacterium.

I have been on the Big 3 for over a year. When I asked if I could stop taking the antibiotics, he said the protocol was to stay on them for 12 months after the last negative culture. He encouraged me to continue to take them even though I am doing well.

I received a letter from Humana Friday that Medicare has denied coverage for Performist even though I have been taking it for over a year. My doctor's nurse said that they refused to cover a generic that is now available. Does anyone have a suggestion on a drug other than performist and its generic drugs that will do the same thing.Du

I am having the above medical procedure so I can have a tooth removed and an inplant inserted. The oral surgeon said with the tooth being in the lower jaw the therapy is required. I am concerned about any adverse side effects.