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Open conversations, shared support, and community connections about anything on your mind.
K

There are many causes of post nasal drip, including sinus infections and allergies. The link below reviews the basics of post nasal drip and the treatment options: https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/167/Postnasal-Drip-in-the-Bronchiectasis-Patient

1 year ago
K

Stress and strong emotions can present with respiratory symptoms, such as shortness of breath and rapid breathing, as the airway between the nose and the lungs constricts. For people without respiratory disease, this is generally not a problem as the body can manage the additional work to breathe comfortably, but psychological stressors can exacerbate breathing problems for people with pre-existing respiratory diseases such as asthma and chronic obstructive pulmonary disease.
https://www.apa.org/topics/stress/body

1 year ago
K

This tool assists you to identify, track your symptoms so you are able to communicate more effectively with your health care provider. https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/NTM_Management_Tool.pdf

Please let us know if you have any specific questions.

1 year ago
K

The link to the Bronchiectasis Action Plan tool may assist you in tracking your symptoms and communicating effectively with your health care provider. https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/ActionPlanEnglish.pdf


1 year ago
K

The link below reviews the basics of inhaler and nebulizer usage: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Inhaled-Medicines

Please let us know if you have any specific questions.

1 year ago
K

Below is an article that reviews tips on how to deal with seasonal allergies: https://www.everydayhealth.com/allergies/how-to-get-ahead-of-allergy-season-this-spring/

1 year ago
P

How to deal with

chronic cough

1 year ago
K

The link below provides information on good nutrition and food apps: https://www.myplate.gov/

1 year ago
G

Hi,,


I will be traveling soon and want a recommendation for a portable nebulizer. My searches have brought up info from 7-8 years ago.


Can anyone recommend a newer portable nebulizer?
thanks


1 year ago
K

More research is now being conducted on the relationship between our guts and chronic lung diseases; this research , the Gut / Lung Microbiome has really expanded over the past 9 years.

Dysbiosis is the imbalance of good and bad bacteria within our guts. Dysbiosis can lead to chronic inflammation and the worsening of chronic respiratory conditions. The link below explains this further in greater depth: https://theconversation.com/how-the-health-of-your-lungs-is-linked-to-the-bacteria-in-your-gut-234515

1 year ago
K

A 24 hour pH Impedance Test is a Gastrointestinal diagnostic test to check your upper Gastrointestinal system for issues such as GERD. The link below, from John Hopkins reviews the details of this test: https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/24-hour-ph-impedance-testing

1 year ago
K

An upper endoscopy, also referred to as an EGD is a diagnostic test to see if an individual has acid reflux/ Gerd. The link below reviews the basics of this diagnostic test: https://www.healthline.com/health/gerd-endoscopy#treatment

1 year ago
K

The blog article below reviews the Basics of Acid Reflux vs. Gerd. The article includes a list of “ Do’s and Don’t s for Respiratory Patients with Acid Reflux/ Gerd: https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/47/The-Basics-of-Acid-Reflux

1 year ago
K

The educational video below, presented by Dr.Gwen Huitt reviews the medical management of GERD/ Acid Reflux. Great tips on preventative measures are provided in this video

:ntmir webinar series Medical Management of GERD with Dr. Gwen Huitt

1 year ago
K

The article below, is based on an interview reviewing 7 tips to lessen Acid Reflux , with Dr. Gwen Huitt, ( retired from National Jewish Health. https://cysticfibrosisnewstoday.com/social-clips/a-specialists-7-tips-for-preventing-reflux-and-aspiration/

1 year ago
K

There are a lot more available resources to assist one with mental health challenges. Mental health can impact our physical health. Media coverage has expanded on mental health challenges since the pandemic, psych telehealth is now available. The link below, from the Cleveland Clinic reviews the different types of depression, the symptoms and treatment: https://my.clevelandclinic.org/health/diseases/929...

1 year ago
A

Your involvement can make a substantial impact by offering important information into the daily lives of those living with bronchiectasis (without cystic fibrosis), also known as Non-Cystic Fibrosis Bronchiectasis (NCFBE), and their family members. This information may potentially improve medical care, and greater awareness among healthcare providers and policymakers. By sharing your responses, you can help foster meaningful change for adults living with NCFBE.

Visit https://bronchiectasis-burden.com/us/ to share your voice!

1 year ago
A

Share how long it took you to finish! Have Fun!

1 year ago
K

The link below reviews the signs of vitamin D deficiency. Vitamin D plays a key role in our immune system and is especially important for individuals with chronic health conditions. https://www.medicinenet.com/14_signs_of_vitamin_d_deficiency/article.htm

1 year ago
K

This tool assists you with communication with your health care provider. Tips on managing NTM are also included in the link below: https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/NTM_Management_Tool.pdf

Please let us know if you have any specific questions.

1 year ago
A

I have had bronchiectasis for around 3 years & was recently diagnosed with mycobacteria abscessus. The lung specialist I have just seen is not real keen on prescribing a nebuliser (I am in Australia). I have just found a pulmonary rehab centre which I am hoping can help me with ACT. How safe is it for me to "self treat" with a nebuliser? I would obviously need help with it but don't know where to turn for help. I'm hoping to see a respiratory physiotherapist through the Pulmonary Rehab clinic.

1 year ago
o

Has anyone tried the nebulized form of n-acetyl cysteine to help thin mucous?? I have discussed this with my doctor, and she has sent the prescription to several drug stores, and they have not been able to attain this drug.

I live in New Jersey.

Thanks

1 year ago
P

Does anyone that has bronchiectasis find that with an effective lung clearance technique that they have been able to achive a clean CT scan? Should that be the goal of therapy and is it possible? I'm going to have a bronchoscopy to suction some out and was wondering if it's realistic to think that it's possible to keep the reoccurrence of mucus to a minimum with good airway clearance techniques? Thanks

1 year ago

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.

Community posts are monitored by the 360social Community Manager, as well as staff respiratory therapists, educators, and other medical professionals.

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