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Health care providers use these term frequently. The article below , from the Cleveland Clinic defines the terms, hypoxia, hypoxemia, their causes , symptoms and treatment options: https://my.clevelandclinic.org/health/diseases/17727-hypoxemia
Below is an article from Harvard Health on the advantages and disadvantages of telehealth: https://www.health.harvard.edu/staying-healthy/telehealth-the-advantages-and-disadvantages
We would love to hear your comments on both the pros and cons of telehealth from your experiences.
My pulmonologist has recommended that I try Brensocatib which has just been released as a treatment for nonCF bronchiectasis.
Late fall is the best time to get the RSV vaccine. Below is information from the CDC on this vaccine. https://www.cdc.gov/rsv/hcp/vaccine-clinical-guida...
Fluzone is the stronger flu vaccine recommended for people over the age of 65, those on long term immunosuppressants and transplant patients. I usually get my vaccination in mid October; it can take a few weeks to reach a higher level of effectiveness in your body. Below is detailed information on the Fluzone vaccine : https://www.cdc.gov/flu/vaccine-types/flu-zone.html#cdc_generic_section_2-people-who-can-receive-fluzone-high-dose-vaccine
A few vaccinations just have initials , not a completely spelt out name. The link below, from the CDC reviews vaccination recommendations throughout our lifeand the diseases that they protect us against. https://www.cdc.gov/vaccines/imz-schedules/downloads/adults-schedule-easy-read.pdf
I found out that I have bronchiectasis and probable NTM last December, and my pulmonologist recommended just watching it for a while. I had a follow-up CT in June and then a bronchoscopy in July because I have never produced any sputum. One of the cultures identified acid fast bacilli but they are still trying to identify the specific one. I feel like I should probably start airway clearance at the very least, and I'm wondering how much time is typically required to do that because I am still working full time and only have 2 -3 free hours per day. I was thinking about cutting back to part time as I transition towards retirement. I'm 65 so that is a possibility, but I do like my current health insurance and worry about the stability of Medicare (I'm currently only on Part D). I'm scheduled to see my doctor on 9/12 so I'm trying to think about how I want to proceed. Thanks for your input!
Poor air quality can really take a toll on respiratory patients, leading to increased inflammation, wheezing, shortness of breath in some individuals. The link below provides a guide for you to better understand the different air quality flags: https://document.airnow.gov/air-quality-guide-for-particle-pollution.pdf
Below is an excellent webinar, designed for respiratory therapists. You can listen and learn a lot from this video if you are not a respiratory therapist. Elevating Awareness of Bronchiectasis
Watch on YouTube: https://www.youtube.com/watch?v=G0RBqnIu-tw&t=1s
Get the latest information on diagnosis, treatments, and ongoing care strategies for bronchiectasis.
Let us know if you have any specific questions,
It is good to have a tool for guidance in the management of NTM Lung Disease. The link below provides information and the tool that you can print out and use regularly. https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/NTM_Management_Tool.pdf
It has been extremely warm on the East Coast over the past week. Weather reports can be confusing for many people. Humidity numbers may not be too high but the dew points are high. The How to Geek link below differentiates the two terms, humidity and dew point to explain how it really feels. https://www.howtogeek.com/733421/forget-humidity-dew-point-is-how-it-really-feels-outside/
NTM question
I was diagnosed,6 days with bronchitis.What type food can i avoid?
2.What type of exercise should I do?
3.When shall i visit my Doctor.
Note:
The medication really stopped the bleeding and mucus but I still have little cough.
I only have Bronchiectasis, not NTM
The NTM Lung Disease Management Tool can assist you on your NTM journey: https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/NTM_Management_Tool.pdf
Below is the link: https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/ActionPlanEnglish.pdf
The plan will assist you on your Bronchiectasis journey. Let us know if you have any specific questions.
We live off-grid. Does anyone know if NTM bacteria can be found in rainwater.
The link below provides a calculator to determine the heat index.
Please take action steps, in advance to keep cool, well hydrated and stocked up on any medications you may need.
https://www.wpc.ncep.noaa.gov/html/heatindex.shtml
Please assist our BNTM community in increasing public awareness of Bronchiectasis.
Sign up for our awareness toolkit. Help us raise awareness in your own network with our free toolkit. It's packed with social media posts, resources, and tips to help you spread the word.
I occasionally get blood in the sputum. For severe cases my pulmonologist prescribes antibiotics, but this time it is not that severe, and seems to be getting better.
Can this issue resolve on its own??
I have heart issues while on treatment. I'm considering stopping treatment. Anybody here just watching and keeping an eye on MAC with out treatment?
I started MAC treatment in March but I had to stop in June due to tachycardia. Now I'm waiting for my pulmonologist to come up w a new treatment plan. I've been off treatment for a week now. I'm worried about not being on treatment.
What treatment is available if the big 3 used for MAC causes tachycardia. Are there other options?
Many caregivers need to be reminded that they must take care of themselves as well as the person that they are caring for. Similar to the being a person on an airplane, it is important to be reminded that you must put the mask on yourself properly before we can take care of others. The link below offers support and guidance for caregivers: https://www.helpguide.org/family/caregiving/family-caregiving
Knowledge is power. The more you know about a particular disease and how it impacts an individual, the better you will be prepared as a caregiver.
We host a monthly online BNTM Coffee Social support group on the 2nd Wednesday of each month at 3pm, EST. Detailed information about upcoming meeting topic and how to register is posted on this site the week before the meeting.
Additionally, there are support groups throughout the world. Please see the link below.
It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with Bronchiectasis and NTM, please consult a physician before making changes to your own Bronchiectasis and NTM management plan.
Community posts are monitored by the 360social Community Manager, as well as staff respiratory therapists, educators, and other medical professionals.