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Hey there! We have a CCN Center in San Diego. I will link the site details page so you can see a list of the providers. UC San Diego. 

Does anybody have a pulmonologist in San Diego who they have found to be an expert in bronchiectasis? 

Brandon,

Thank you so much for the reminders. It is okay to occasionally have other than a balanced diet when you are exhausted, overwhelmed with medical appointments, therapies. Having support enables us to keep moving forward. We understand your challenges and are here for you. 

Change, adaptation to a new site does take a little time but we believe that we will be a more connected community as time goes forward. We are so happy that you have found us and we hope that you will check in regularly. 😍

Many Thanks for the information,best wishes Eileen.

Looking forward to this year's celebration! So many wonderful plans are being put into place for our global community. 

Hello! Early heat waves are occurring in parts of the USA today. Do you understand the meaning of the dew point, heat index and how it can impact individuals with respiratory issues? The blog article below defines such terms used by meteorologists that may assist you in better understanding the weather forecast.  Many people listen to the temperature only and do not pay attention to the dew point number. Being prepared for changing weather patterns will assist you in planning throughout the summer months.  Why Weather can Worsen your Lung Condition

I am looking forward to the 5th annual World Bronchiectasis Day! We have come along way in the Bronchiectasis space over the past decade. World Bronchiectasis Day continues to increase public awareness, education on the subject and research opportunities. I hope that you will assist in spreading the word about World Bronchiectasis Day!  

Janh,

I fully understand. We do find out who our true friends, support system is over time. I got tired of explaining my situation to others and continued to socialize with only those who listened to me and understood that I was dealing with a chronic condition . These people understood that I was not contagious. We cannot fully social isolate ourselves since that can add  on to our current challenges. Social isolation can lead to greater angst. 

 Janh,

I am glad that coughing is a little less. Hopefully, you will experience more relief soon. 

Yes, vitamin A and other vitamins can be the cause of dry skin. Eucerin or other good quality skin lotions can lessen the dryness. 

Maybe have blood work drawn for vitamin and mineral deficiencies. Medications can sometimes causes deficiencies in these areas. With that said, deficiencies in some of these areas can cause dry skin. 

This is great new information!!

I definitely think as a women it very much affects my social life. If I talk I get coughing and mucus. People stare and ask are you sick. I don’t like to discuss either everyone. So I find myself missing a lot. Miss cards going to lunch talking with people.

I have been on it for 4 months I have dry skin and have one reapirtory flareup. I agree mucus production not affected. Coughing a little less. 

A little information on reverse osmosis for those who are unfamiliar with this method:

• Studies indicate that properly functioning reverse osmosis systems can significantly reduce or eliminate NTM from water.
• The effectiveness can depend on the specific system design and maintenance.

• Regular maintenance and monitoring are crucial to ensure the system operates effectively and continues to remove contaminants.

Many thanks for the information,regards Eileen

Reverse Osmosis is how we filter our water,hope this helps 

Dry skin is treatable. Do you take a daily vitamin in case one of your vitamins maybe low as well?  

I realize that this update in boiling water may have some individuals questioning whether or not 3 minutes is adequate time to boil water after being accustomed to boiling water for 10-15 minutes. 
I have been boiling water for over 10 minutes for many years. This latest research on boiling water was done at 10 centers throughout the country.

I am adding 2 extra minutes for extra precautions, my personal preference. Five minutes is still far better than 10-15 minutes. 

I am noticing one side effect....... dry skin.  I began using OTC healing lotion which helps with that one.

Hello! Springtime can bring on an increase in respiratory symptoms for some individuals. Many respiratory symptoms overlap in different respiratory disorders. Do you understand what causes wheezing?  The blog article below reviews the causes of wheezing and treatment options.

Wheezing and the Bronchiectasis/NTM Patient

Please let us know if you have any questions. 

Kalli,

Thsnk you for posting this great podcast on health equity. Everyone who has a diagnosis of Bronchiectasis and NTM deserves to be treated fairly regardless of their zip code. The expansion of the BNTM Care Center Network's intention is  to provide greater access to patients throughout the country. There is hope that more virtual visits will be possible in the future. 

Hello! I have great news to report on the  time required to boil water to get rid of NTM. Jennifer Honda, PhD ,BNTM water expert presented an update at the recent NTMir Patent Conference. The research study, referred to as the BANTER study, Boiling Assessment of NTM in Tap Water Evaluation Regional, included top BNTM experts throughout the country including Dr. Joseph Falkinham , National Jewish Health and 7 other BNTM experts. The new recommendation is to boil water for 3 minutes!!! Wow! What a time saver. We don’t have to be concerned about boiling water for 10-15 minutes anymore when we are at home and or out and about. I look forward to hearing more positive updates that will lessen the time we need for daily therapies. 

Ellen,

You are most welcome! I fully understand the GI challenges- I have been there. GI issues can be very complicated- mixed views on how to treat. I am here to assist you on this part of the journey. 

Roberta,

Hello! Thank you for sharing your experience with our community. I am sorry that you had adverse reactions to Brinsupri. 

Working on it - just started seeing a new GI doc.  Thanks for your input.

I started talking it & developed headaches shortly after starting. I also had severe GI issues. Had anyone had this?

Please keep us posted Tim and good luck

Tim,

Hello! You are most welcome! I hope that you do see more results in time. I assume that you have discussed this with your Pulmonologist who has prescribed Brinsupri? 

Thanks for your reply.  I've been on it for about 10 weeks now.  Not sure what to expect in terms of results other than the claim that it will reduce flare ups.  I've noticed no side effects as yet, so that is good.  However, I cannot say it has reduced my daily symptoms (mucus, coughing, etc.) at all.  I am hoping someone else may be on it as well so I can hear their experience with Brinsupri.

Tim,

Below are the most frequently asked questions on Brinsupri: https://www.brinsupri.com/frequently-asked-questions/

Tim,

Hello! I haven’t taken Brinsupri yet but I have heard a lot of positive results recently. Brinsupri takes an average of 6 weeks or more to show results. 

I started taking the newly approved BE medicine Brensupri in February of 2026.  I'm interested in any feedback from others who are also using this medicine.

Thank you

Brandon,

Hello! Adorable dogs, :).  Wishing you a day full of smiles and peace as well.  

Hello! I hope that you are having a good day as well. :)

Ellen,
You are most welcome! Being on a lo Fodmap diet can be challenging on a long term basis. I hope that you have a great GI/ Integrative Health Care Provider or Registered Dietitian to assist you. 

Kalli, Thank you for this great post. It is great to read about the research done about the differences in the outcomes of lung diagnoses in women and men. I look forward to reading updates as more research unfolds. 

Hi - thank you for your feedback.  I've been eating low Fodmap for a couple of years.  I'll let you know what the SIBO results are.  Appreciate the feedback.

Hi Val A. Welcome to the community.  Check ins are meant for quick status updates such as saying hi or letting everybody know how you're doing. Some of us share photos of pets or other fun things.  As more posts are added to the activity feed they move further down off of page 1,  so they are not as visible to the community.

Discussions are for more in depth discussions and will remain visible to the community much longer. Every time someone adds a reply it will display in the feed, no matter when the discussion was added, so it can be visible on the feed many times adding more visibility to the discussion.

The comment about sharing personal medical info is just reminding you it's a public community, so for security and privacy it's best not to share names and addresses and things like that.