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BronchandNTM360social welcomes new member Corrine T who
joins 5,535 current members of our community.
We're glad you're here!
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Hello. Trying to see if there is any information or studies on post menopausal women taking BHRT and increased risk of getting an NTM? Currently have BE only. Started taking BHRT recently due to osteoporosis diagnosis. I haven't found be try much I do or studies - only one Korean study in pubmed
Hello! Today is the beginning of Pulmonary Rehab Week. Pulmonary Rehab assists an individual with treatment plans, reviews airway clearance, nutrition, coping skills.
Below is information on the basics of Pulmonary Rehab: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Pulmonary-Rehab
Let us know if you have been through a pulmonary rehab program, and have a good experience to share with the community .
I am doing well today. I am happy to discover this support group! I was diagnosed with Bronchiectasis just over 2 years ago. I was relieved to not have NTM, just an easily treatable pneumonia throughout my lungs. Over the last year I have had Bronchiectasis exacerbations after a routine cold. Antibiotics sent me back to a minimal sputum baseline. Now I am using a nebulizer with inhaled saline 1-2 x most days. I did not see that recommended on this feed and the post about respiratory measures to take to prevent Bronchiectasis exacerbations. I am wondering why not… Btw, 1 pulmonologist prescribed the nebulizer/inhaled saline and another said it would not be helpful…?!
Hello! Great question. Research has shown that NTM cases do rise after menopause when estrogen levels drop.
- Estrogen appears to support immune defenses in the lungs.
- Lower estrogen may reduce the body's ability to control mycobacteria
- Hormones may affect airway structure and mucus clearance.
- Many factors are involved when a health care provider decides whether or not HRT is the best option for a patient. Recent studies show it is less of a concern than it was in the past. I would think it would be positive - some estrogen replacement maybe better than none. Estradiol is commonly used in many post menopausal women.More research needs to be conducted on this topic.
I'm sure I heard on a webinar something about HRT and NTM/BE. Does anyone know of any studies into the effect of HRT on post menopausal women who get NTM? I'm wondering if it might help prevent NTM in the first place, but then once you've got it, or had it, I'm then wondering if the HRT has a positive or negative effect on stable conditions or any medications when not stable.
Mucolytics are medications that thin or break up the sputum in your lungs, making it easier to cough up and out. These medications assist one to clear out the mucus as much as possible. Below is a link to the different medications. Please let us know if you have any specific questions. Medicines for Airway Clearance | Bronchiectasis and NTM Association
Hello everyone!
Our next BronchandNTM360social Coffee Break is Wednesday, March 11, 2026 @ 2:30pm EST.
This month we’ll be joined by Divya Reddy MBBS, MPH to discuss exacerbations and the role DPP1 inhibitors (such as Brinsupri) have in minimizing exacerbations. Dr. Reddy is the Associate Professor of Medicine / Fellowship Director, Pulmonary and Critical Care Medicine Director, Bronchiectasis and Nontuberculous Mycobacterial (NTM) Disease Program at Montefiore Einstein.
Resources:
https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Exacerbations
We will open the call fifteen minutes early, so please join us if you wish to speak casually with us or other community members. Any health-related discussion will be held until the start of the meeting.
The meeting registration link is here:
https://us06web.zoom.us/meeting/register/tZclcuusrDMpG9PrF3BDUA2nw2csTkQsg7EG#/registration
Looking forward to seeing you soon!
Hello! Living with Bronchiectasis or NTM can sometimes
make it feel like your lungs are in charge- every time you do your airway
clearance, you take that control back. Airway clearance isn’t just a treatment
— it is an act of self-care and strength. Each session helps clear mucus and
reduces the risk of infection.
Some days it’s easy. Some days it takes real
determination—both count. Every session matters✨ . Every effort counts. Every day
you show up for your health is a win.
You may not see the results immediately, but over time,
these small, consistent actions make a powerful difference for your lungs and
your quality of life—today’s reminder: You are not powerless in this disease. Your
Airway Clearance Is Your Power 💙. Your daily self-care
is your strength. 💪💙
Hello! Your Airway Clearance Is Your Power 💙
. Living with Bronchiectasis or NTM can sometimes make it feel like your lungs are
in charge- every time you do your airway clearance, you take that control back.
Airway clearance isn’t just a treatment — it is an act of self-care and
strength. Each session helps clear mucus and reduces the risk of infection.
Some days it’s easy. Some days it takes real determination—both
count. Every session matters✨ . Every effort counts. Every
day you show up for your health is a win.
You may not see the results immediately, but over time, these
small, consistent actions make a powerful difference for your lungs and your
quality of life—today’s reminder: You are not powerless in this disease. Your
daily care is your strength. 💪💙
Hello! Your Airway Clearance Is Your Power 💙 . Living with Bronchiectasis or NTM can sometimes make it feel like your lungs
are in charge- every time you do your
airway clearance, you take that control back. Airway clearance isn’t just a
treatment — it is an act of self-care and strength. Each session helps move
mucus out and lowers the risk of infection.
Some days it’s easy. Some days it takes real
determination—both count. Every session matters✨ . Every effort counts. Every day you show up for your health is a win.
You may not see the results immediately, but over time,
these small, consistent actions make a powerful difference for your lungs and
your quality of life—today’s reminder: You are not powerless in this disease.
Your daily care is your strength. 💪💙
Hello! There are many different types of airway clearance devices. Which one do you use?It does take some patients time to figure out which device is most suitable and effective for them to use on an ongoing basis. Below is a link that reviews the different types of devices. Keep on doing your airway clearance- better days are on the horizon. https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Coping-with-Airway-Mucus/Airway-Cleara
Please keep us updated on how you are doing with NAC. It seems to be recommended more in the UK and other countries than the USA.
Yes, I do, Use all the techniques-small and larger airways/Aerobika. Also use Musinex which helps. My pulmonologist didn't say anything about NAC, but I have followed this on the NIH site with several studies, first study with 600mg. but research found fewer flares with 1200mg. Have only started a month ago, so wondered about others. Thank you for asking.
Hi I’m new here. I was born with COPD due to complications at birth. I’m 38 years old. I went 30 years without seeing a pulmonologist but this past Christmas I got pneumonia and it was suggested I go see one. A week ago I had a pulmonary function test and a ct scan that said I had severe bronchiectisis and a FEV1 of 20%. The first time meeting the pulmonologist he told me I would be on a ventilator in 4-5 years and referred me to a lung transplant facility. I was shocked. And now I’m terrified I’m gonna die in a couple years
March is Sleep Apnea
Awareness Month! Studies suggest that more than 50% of people with
bronchiectasis also have obstructive sleep apnea (OSA).1
Common symptoms of
sleep apnea include loud snoring, gasping for air in your sleep, difficulty
staying asleep, waking up with a dry mouth, having headaches in the morning,
and feeling sleepy throughout the day. If you share a bed with someone, they
might also witness sleep apnea symptoms, like breathing that stops and then
restarts as you sleep.
For people with both
bronchiectasis and sleep apnea, the most common symptoms are snoring and
daytime sleepiness. However, some people with bronchiectasis have OSA without
recognizing any symptoms.1 If your doctor has not already started
the conversation, talk to them at your next appointment about whether you
should be evaluated for sleep apnea.
Resources
1. Borekci S, Hacoglu
Y, Musellim B. Investigation of obstructive sleep apnea in adult non-cystic
fibrosis bronchiectasis patients. Eur Resp J. 2019;54(63). doi:10.1183/13993003.congress-2019.PA631
March is Sleep Apnea
Awareness Month! Studies suggest that more than 50% of people with
bronchiectasis also have obstructive sleep apnea (OSA).1
Common symptoms of
sleep apnea include loud snoring, gasping for air in your sleep, difficulty
staying asleep, waking up with a dry mouth, having headaches in the morning,
and feeling sleepy throughout the day. If you share a bed with someone, they
might also witness sleep apnea symptoms, like breathing that stops and then
restarts as you sleep.
For people with both
bronchiectasis and sleep apnea, the most common symptoms are snoring and
daytime sleepiness. However, some people with bronchiectasis have OSA without
recognizing any symptoms.1 If your doctor has not already started
the conversation, talk to them at your next appointment about whether you
should be evaluated for sleep apnea.
Resources
1. Borekci S, Hacoglu
Y, Musellim B. Investigation of obstructive sleep apnea in adult non-cystic
fibrosis bronchiectasis patients. Eur Resp J. 2019;54(63). doi:10.1183/13993003.congress-2019.PA631
March is Sleep Apnea
Awareness Month! Studies suggest that more than 50% of people with
bronchiectasis also have obstructive sleep apnea (OSA).1
Common symptoms of
sleep apnea include loud snoring, gasping for air in your sleep, difficulty
staying asleep, waking up with a dry mouth, having headaches in the morning,
and feeling sleepy throughout the day. If you share a bed with someone, they
might also witness sleep apnea symptoms, like breathing that stops and then
restarts as you sleep.
For people with both
bronchiectasis and sleep apnea, the most common symptoms are snoring and
daytime sleepiness. However, some people with bronchiectasis have OSA without
recognizing any symptoms.1 If your doctor has not already started
the conversation, talk to them at your next appointment about whether you
should be evaluated for sleep apnea.
Resources
1. Borekci S, Hacoglu
Y, Musellim B. Investigation of obstructive sleep apnea in adult non-cystic
fibrosis bronchiectasis patients. Eur Resp J. 2019;54(63). doi:10.1183/13993003.congress-2019.PA631
Indywoman,
I do not take NAC- it was never recommended by my Pulmonologist. Do you increase your airway clearance during these peak seasons?
Have looked through the questions/answers on NAC. Saw this about 3 months ago. https://pmc.ncbi.nlm.nih.gov/articles/PMC12603500/
I have asthma/Bronchiectasis. People taking this were in threads a while ago. I don't want to take more supplements than I have to, and get sick with colds/exacerbations from Oct. -March, but healthy April-Oct. Do those of you who take 1200 of NAC daily, a) still do that and b) any recommendations on just taking it for me between Oct-March?
National “I Want You to Be Happy” Day 😊💙
Today is simple… and powerful.
I want you to be happy.
Not “perfect day” happy.
Not “everything is easy” happy.
Just real-life, breathing-through-it, doing-the-best-we-can happy.
Living with COPD, bronchiectasis, NTM -- or caring for someone who does -- isn’t always light. So today feels like a good day to talk about intentional happiness.
Here are a few gentle ideas for both patients and caregivers:
🌬️ For patients:
Step outside (even for 2–5 minutes) and take slow, supported breaths. Fresh air + paced breathing can shift your whole mood.
Play a song that lifts you -- even if you just sway in your chair.
Text someone in this community and say, “Thinking of you.”
Celebrate something small: good sats, finishing airway clearance, making it through a tough morning.
🤝 For caregivers:
Take 10 guilt-free minutes just for you. Sit. Breathe. Quiet.
Accept help if it’s offered -- happiness sometimes looks like sharing the load.
Do one thing that’s only for your joy today (music, walk, call a friend, favorite snack).
Remember: your well-being matters just as much.
💙 And for all of us…
Happiness doesn’t have to be big. It can be:
A fluffy pet beside you
A steady breathing day
A laugh during Coffee Break
A message that reminds you you’re not alone
Let’s make this interactive:
✨ Drop ONE thing that helps you feel a little happier on hard days.
✨ Or tag someone here and tell them, “I want you to be happy.”
You never know whose day you might gently lift.
I want you to be happy. Truly.
And I’m really grateful we get to do this together!
Hello! Are you doing airway clearance on a daily basis? Airway clearance is frequently compared to flossing your teeth. Clearing out your airways lessens the chances of getting a respiratory infection. Bad respiratory infections can lead to cavity formation in your lungs , similar to a cavity in your teeth. Below is the link to manual airway clearance techniques. https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Coping-with-Airway-Mucus/Manual-Airway-Clearance-Techniques
Hello! The month of March has begun!!! Daylight savings time begins in 7 days. We have endured a very challenging winter with frigid temperatures and a lot of snow. March reminds us that even after the longest winters, healing can quietly begin again. Spring and nicer weather are on its way — and so is renewed energy, and hope.Here’s to a month filled with resilience .💙
Throughout this month, we will focus on pulmonary rehabilitation, airway clearance devices and health equity.
Hello! Below is an excellent, comprehensive article on gastrointestinal issues, focusing on why some people belch more frequently. Reasons for frequent belching can include GERD, a hiatal hernia and other conditions. https://www.everydayhealth.com/healthy-living/are-you-burping-too-much/?slot=0&xid=nl_EHNLdigestive_2026-02-28_44414463&utm_source=Newsletters&nl_key=nl_digestive_health&utm_medium=email&utm_content=2026-02-28_blast_44414463&utm_campaign=Digestive_Health&lctg=5a4ee3123f92a41e9a1b5709&zdee=gAAAAABl1p9sFJ1RkXaC3Vh7vJnM49VJaAFPsdWdZZv1cgDyDjEJfHRZs0iD9ai8DSbE1svqGD88HtLqpaq5YD5ujo0HG0M725tSbIe8PwHZFk4TqcURT_o%3D
Hello! Are you interested in watching a video? The video below on GERD/ Acid Reflux, presented by Dr. Gwen Huitt, ( formerly of National Jewish Health) offers practical tips on managing acid reflux effectively https://m.youtube.com/watch?v=lf_hSgJ21BY
Please let us know if you have any questions. :)
Happy Rare Disease Day! Each year, this day shines a spotlight on rare diseases, helping to raise awareness for the 300 million+ people around the world who live with a rare disease.
Did you know living with a rare disease isn’t actually that uncommon? According to the National Organization for Rare Diseases (NORD), one in every 10 Americans is affected by a rare disease.
In the United States, a rare disease is generally considered one affecting fewer than 200,000 people across the country. By the numbers, NTM is a rare disease, impacting an estimated 86,000-200,000+ Americans. Bronchiectasis is technically not a rare disease; between 340,000 and 522,000 adults are receiving treatment for bronchiectasis in the U.S. However, bronchiectasis is still underrecognized and often misdiagnosed.
As you may know firsthand, people with rare or uncommon diseases often face additional challenges, from difficulty getting a timely diagnosis to limited research and lack of community support. In honor of Rare Disease Day, we stand together with millions of people around the world. We encourage you to share your story and connect with others who understand what it’s like to live with a rare disease.
Hello! Many BNTM patients don’t understand the need for a
gastroenterologist. We are often
overloaded by the number of specialists that we are advised to see. I am
reviewing basic GI testing so you can be empowered to understand and ask the
right questions when you do see a gastroenterologist.
🌡️ Esophageal pH monitoring
measures acid levels in your esophagus. It tells your doctor: How much acid is
refluxing from the stomach into the esophagus. How often reflux happens, and
how long acid stays there.
What does “pH” actually mean? pH is a scale that measures acidity:
7 = neutral, below 7 = acidic. The lower the number, the more acidic your
stomach is; stomach acid is very acidic (around pH 1–3). Your esophagus should
not be exposed to that acid frequently. If testing shows repeated drops in
esophageal pH below 4, it usually indicates significant acid.
💡 Why This Matters for BNTM-
significant acid can weaken the lower esophageal sphincter (LES) and the
esophageal clearance, which is how well acid is pushed back down. This can lead
to: chronic reflux, silent reflux, inflammation, difficulty swallowing, and or
chest discomfort.
pH testing helps determine whether acid is truly the
cause of symptoms; it checks whether acid is damaging the esophagus or if
something else is going on. pH testing can be done the traditional way, with a
thin catheter placed in your nose or with a Bravo Capsule (a camera inserted
into your esophagus) during an EGD. Please discuss these options with your
healthcare provider. Understanding what is really going on in your upper
gastrointestinal system will determine what meds are most suitable for you. You
do not want to be on the wrong medications for an extended period of time.
Hello! Many BNTM patients don’t understand the need for a gastroenterologist. We are often overloaded by the number of
specialists that we are advised to see. I am reviewing basic GI testing so you
can be empowered to understand and ask the right questions when you do see a gastroenterologist.
🌡️ Esophageal pH
monitoring measures acid levels in your esophagus. It tells your doctor: How
much acid is refluxing from the stomach into the esophagus. How often reflux happens,
and how long acid stays there.
What does “pH” actually mean? pH is a scale that measures
acidity: 7 = neutral, below 7 = acidic. The lower the number, the more acidic
your stomach is; stomach acid is very acidic (around pH 1–3). Your esophagus
should not be exposed to that acid frequently. If testing shows repeated drops
in esophageal pH below 4, it usually indicates significant acid.
💡 Why This Matters for
BNTM- significant acid can weaken the
lower esophageal sphincter (LES) and the esophageal clearance, which is how
well acid is pushed back down. This can lead to: chronic reflux, silent reflux,
inflammation, difficulty swallowing, and or chest discomfort.
pH testing helps determine whether acid is truly the cause
of symptoms; it checks whether acid is damaging the esophagus or if something
else is going on. pH testing can be done the traditional way, with a thin catheter
placed in your nose or with a Bravo Capsule (a camera inserted into your
esophagus) during an EGD. Please discuss these options with your healthcare
provider. Understanding what is really going on in your upper gastrointestinal system
will determine what meds are most suitable for you. You do not want to be on
the wrong medications for an extended
period of time.
Hello! Staying proactive about your health isn’t optional —it
is essential for our community.🔍 Early Insight = Better Outcomes.
Has your healthcare provider suggested Manometry for you?
Manometry helps detect non-obvious changes before symptoms become
serious. Catching issues early means more treatment options, less invasive
interventions, and better overall health management. Testing gives your
healthcare team measurable data — not guesses — so they can monitor progression
and adjust treatment at the right time.
If you are a BNTM patient dealing with reflux, or unexplained
digestive symptoms, manometry testing can be a game-changer. Performed by a
gastroenterologist, manometry is a specialized test that measures how well the
muscles and nerves in your digestive tract are working and how well the lower
esophageal sphincter,(LES) opens and closes
Why It Matters for BNTM patients:
✅ Identifies swallowing disorders
(dysphagia)
✅ Diagnoses motility disorders
Conditions like esophageal spasm or ineffective motility
✅ Guides treatment
decisions-results help your care team choose the right medications, therapies,
or interventions.
✅ Prevents complications-
untreated motility issues can lead to malnutrition, aspiration, or worsening
reflux. Manometry isn’t just a test — it’s a roadmap for your healthcare
provider.
Hello! Staying proactive about your health isn’t optional —it
is essential for our community.🔍 Early Insight = Better Outcomes.
Has your healthcare provider suggested Manometry for you?
Manometry helps detect non-obvious changes before symptoms become
serious. Catching issues early means more treatment options, less invasive
interventions, and better overall health management. Testing gives your
healthcare team measurable data — not guesses — so they can monitor progression
and adjust treatment at the right time.
If you are a BNTM patient dealing with reflux, or unexplained
digestive symptoms, manometry testing can be a game-changer. Performed by a
gastroenterologist, manometry is a specialized test that measures how well the
muscles and nerves in your digestive tract are working and how well the lower
esophageal sphincter,(LES) opens and closes
Why It Matters for BNTM:
✅ Identifies swallowing disorders
(dysphagia)
✅ Diagnoses motility disorders
Conditions like esophageal spasm or ineffective motility
✅ Guides treatment
decisions-results help your care team choose the right medications, therapies,
or interventions.
✅ Prevents complications-
untreated motility issues can lead to malnutrition, aspiration, or worsening
reflux. Manometry isn’t just a test — it’s a roadmap for your healthcare
provider.
Hello! Staying proactive about your health isn’t optional —
it is essential for our community.🔍 Early Insight = Better
Outcomes. Has your healthcare provider suggested Manometry for you?
Manometry helps detect non-obvious changes before symptoms
become serious. Catching issues early means more treatment options, less
invasive interventions, and better overall health management. Testing gives
your healthcare team measurable data — not guesses — so they can monitor
progression and adjust treatment at the right time.
If you are a BNTM patient dealing with reflux, or
unexplained digestive symptoms, manometry testing can be a game-changer. Performed
by a gastroenterologist, manometry is a specialized test that measures how well
the muscles and nerves in your digestive tract are working and how well the lower esophageal sphincter
(LES) opens and closes
Why It Matters for BNTM:
✅ Identifies swallowing disorders
(dysphagia)
✅ Diagnoses motility disorders Conditions
like esophageal spasm or ineffective motility
✅ Guides treatment decisions-results
help your care team choose the right medications, therapies, or interventions.
✅ Prevents complications- untreated
motility issues can lead to malnutrition, aspiration, or worsening reflux. Manometry
isn’t just a test — it’s a roadmap for your healthcare provider.
Manometry and pH testing work together but measure different
things.
The Key Difference between the two:
Together, they give a complete picture of function and acid exposure, which is especially important when managing conditions such as BNTM.
If symptoms aren’t improving with standard reflux treatment, pH testing can provide the clarity needed to adjust the plan confidently.
I'm off my Ciprofloxacin after two weeks, was meant to be on it for three, but my lower legs seemed to belong to someone else, and I misjudged a step while boarding a train and fell hard onto my knees. No real damage done. However, while I was on the Cipro and I can now confirm it was that because the side effects have stopped, I couldn't walk further than about 250m without feeling my lungs would explode, struggled up our driveway which probably has a 15 degree incline, had increased chest pain and then of course, the tingling lower legs. Doctors said those type side effects were very rare so probably not the Cipro causing it.
Hmmm, so how do you 'make a fuss" about it so they take you more seriously.
I think I'm sensitive to a lot of the medications, hence I reckon I'd be one of the best clinical research guinea pigs!
All good now though - sort of...
Hello! Have you had an Endoscopy recently? Why Do Bronchiectasis & NTM Patients Get One? Think of an endoscopy as a tiny camera tour inside your body. A doctor gently guides a thin, flexible tube using a light and a camera through your mouth to examine your esophagus, stomach, and upper small intestine. It sounds frightening—but most people are comfortable and sleepy during the procedure, and it usually takes 15–30minutes. Why It Matters for Bronchiectasis & NTM Patient in BNTM lung disease, gastroesophageal reflux (GERD), and aspiration are major hidden contributors to lung damage. Many bronchiectasis/NTM patients have: Acid reflux, weak lower esophageal sphincter, hiatal hernia, and or delayed gastric emptying. Refluxed acid or food can travel up and be micro-aspirated into the lungs, worsening infection and inflammation. Endoscopy helps detect: Esophagitis, Barrett’s esophagus, Hiatal hernia, and Severe acid damage. Patients without classic heartburn may have “silent reflux.” Preventing Ongoing Lung Reinfection- Repeated aspiration can: Feed NTM organisms, worsen bronchiectasis, cause chronic cough, and reduce antibiotic effectiveness. Evaluating Medication Side-Effects: These can cause: Gastritis, Ulcers, Esophageal irritation. Endoscopy helps identify damage if patients report: Persistent nausea, Pain when swallowing, Upper abdominal pain. Nutritional Issues- Many BNTM patients struggle with: Low body weight, Poor appetite, Malabsorption. Endoscopy can check for: Gastric inflammation, Ulcers, Celiac disease, and structural issues affecting intake. Please let us know if you have any specific questions.
Hello! Have you had an Endoscopy?
What Is an Endoscopy — and Why Do Bronchiectasis & NTM Patients Get One? Think
of an endoscopy as a tiny camera tour inside your body. A doctor gently guides
a thin, flexible tube (with a light and a camera) through your mouth to examine
your esophagus, stomach, and upper small intestine. It sounds frightening—but
most people are comfortable and sleepy during the procedure, and it usually
takes 15–30 minutes. Why It Matters for Bronchiectasis & NTM Patient in
BNTM lung disease, gastroesophageal reflux (GERD), and aspiration are major
hidden contributors to lung damage.
1⃣ Detecting Silent
Reflux (GERD)
Many bronchiectasis/NTM
patients have:
• Acid reflux
• Weak lower esophageal sphincter
• Hiatal hernia
• Delayed gastric emptying
Refluxed acid or food can
travel up and be micro-aspirated into the lungs, worsening infection and
inflammation. Endoscopy helps detect:
• Esophagitis
• Barrett’s esophagus
• Hiatal hernia
• Severe acid damage. Even patients without classic
heartburn may have “silent reflux.”
2⃣ Preventing Ongoing
Lung Reinfection- Repeated aspiration can: Feed NTM organisms, worsen
bronchiectasis, cause chronic cough, reduce antibiotic effectiveness
3⃣ Evaluating
Medication Side Effects-These can cause: Gastritis, Ulcers, Esophageal
irritation
Endoscopy helps identify
damage if patients report: Persistent nausea, Pain when swallowing, Upper
abdominal pain
4⃣ Nutritional Issues- Many
BNTM patients struggle with:
• Low body weight, Poor appetite, Malabsorption
Endoscopy can check for: Gastric
inflammation, Ulcers, Celiac disease, and structural issues affecting intake
Maintaining weight is
critical for immune function in NTM disease.
5⃣ Pre-Surgical
Evaluation- If a patient is being considered for: Anti-reflux surgery (e.g.,
fundoplication), Lung resection, or advanced bronchiectasis management.
Hello! Have you had an Endoscopy recently? What Is an Endoscopy — and
Why Do Bronchiectasis & NTM Patients Get One? Think of an endoscopy as a
tiny camera tour inside your body. A doctor gently guides a thin, flexible tube
using a light and a camera through your mouth to examine your esophagus,
stomach, and upper small intestine. It sounds frightening—but most people are
comfortable and sleepy during the procedure, and it usually takes 15–30
minutes. Why It Matters for Bronchiectasis & NTM Patient in BNTM lung
disease, gastroesophageal reflux (GERD), and aspiration are major hidden
contributors to lung damage. Many bronchiectasis/NTM patients have: Acid reflux,
weak lower esophageal sphincter, hiatal hernia, and or delayed gastric emptying
Refluxed acid or food can travel up and be micro-aspirated
into the lungs, worsening infection and inflammation. Endoscopy helps detect:
Esophagitis, Barrett’s esophagus, Hiatal hernia, and Severe acid damage. Even
patients without classic heartburn may have “silent reflux.”Preventing Ongoing
Lung Reinfection- Repeated aspiration can: Feed NTM organisms, worsen
bronchiectasis, cause chronic cough, and reduce antibiotic effectiveness. Evaluating Medication Side-Effects: These can cause:
Gastritis, Ulcers, Esophageal irritation. Endoscopy helps identify damage if patients
report: Persistent nausea, Pain when swallowing, Upper abdominal pain. Nutritional Issues- Many BNTM patients struggle with: Low
body weight, Poor appetite, Malabsorption. Endoscopy can check for: Gastric
inflammation, Ulcers, Celiac disease, and structural issues affecting intake. Maintaining
weight is critical for immune function in NTM disease. Please let us know if
you have any specific questions.
Hello! Have you had an
Endoscopy? What Is an Endoscopy — and Why Do Bronchiectasis & NTM Patients
Get One? Think
of an endoscopy as a tiny
camera tour inside your body. A doctor gently guides a thin, flexible tube
(with a light and a camera) through your mouth to examine
your esophagus, stomach, and
upper small intestine. It sounds frightening—but most people are comfortable
and sleepy during the procedure, and it usually
takes 15–30 minutes. Why It
Matters for Bronchiectasis & NTM Patient in BNTM lung disease,
gastroesophageal reflux (GERD), and aspiration are major
hidden contributors to lung
damage.
Many bronchiectasis/NTM patients
have:
• Acid reflux
• Weak lower esophageal
sphincter
• Hiatal hernia
• Delayed gastric emptying
Refluxed acid or food can travel
up and be micro-aspirated into the lungs, worsening infection and
inflammation. Endoscopy helps
detect: Esophagitis, Barrett’s esophagus, Hiatal hernia and Severe acid damage.
Even patients without classic heartburn may have “silent reflux.”
Preventing Ongoing Lung
Reinfection- Repeated aspiration can: Feed NTM organisms, worsen bronchiectasis,
cause chronic cough, reduce antibiotic effectiveness
Evaluating Medication Side
Effects-These can cause: Gastritis, Ulcers, Esophageal irritation
Endoscopy helps identify damage
if patients report: Persistent nausea, Pain when swallowing, Upper abdominal
pain
Nutritional Issues- Many BNTM
patients struggle with: Low body weight, Poor appetite, Malabsorption
Endoscopy can check for:
Gastric inflammation, Ulcers, Celiac disease, and structural issues affecting
intake
Maintaining weight is critical
for immune function in NTM disease.
Please
let u know if you have any specific questions.
Hello! Have you had an Endoscopy?
What Is an Endoscopy — and Why Do Bronchiectasis & NTM Patients Get One? Think
of an endoscopy as a tiny camera tour inside your body. A doctor gently guides
a thin, flexible tube (with a light and a camera) through your mouth to examine
your esophagus, stomach, and upper small intestine. It sounds frightening—but
most people are comfortable and sleepy during the procedure, and it usually
takes 15–30 minutes. Why It Matters for Bronchiectasis & NTM Patient in
BNTM lung disease, gastroesophageal reflux (GERD), and aspiration are major
hidden contributors to lung damage.
1⃣ Detecting Silent
Reflux (GERD)
Many bronchiectasis/NTM
patients have:
• Acid reflux
• Weak lower esophageal sphincter
• Hiatal hernia
• Delayed gastric emptying
Refluxed acid or food can
travel up and be micro-aspirated into the lungs, worsening infection and
inflammation. Endoscopy helps detect:
• Esophagitis
• Barrett’s esophagus
• Hiatal hernia
• Severe acid damage. Even patients without classic
heartburn may have “silent reflux.”
2⃣ Preventing Ongoing
Lung Reinfection- Repeated aspiration can: Feed NTM organisms, worsen
bronchiectasis, cause chronic cough, reduce antibiotic effectiveness
3⃣ Evaluating
Medication Side Effects-These can cause: Gastritis, Ulcers, Esophageal
irritation
Endoscopy helps identify
damage if patients report: Persistent nausea, Pain when swallowing, Upper
abdominal pain
4⃣ Nutritional Issues- Many
BNTM patients struggle with:
• Low body weight, Poor appetite, Malabsorption
Endoscopy can check for: Gastric
inflammation, Ulcers, Celiac disease, and structural issues affecting intake
Maintaining weight is
critical for immune function in NTM disease.
5⃣ Pre-Surgical
Evaluation- If a patient is being considered for: Anti-reflux surgery (e.g.,
fundoplication), Lung resection, or advanced bronchiectasis management.
Hello All. I have recently been diagnosed with NTM/Bronchiectasis. I am 52 years old. I have not started treatment yet, and I’m very anxious. I had all the testing done last week ( sputum sample, blood tests, pre/post spirometer) I’m scheduled for a bronchoscopy and sweat test. I was diagnosed with high blood pressure a year ago. I am on Telmisartan and Hydrochlorothiazide.and propranolol. Even with medication, my BP is still high. I was rushed to the ER on Sunday because my left pupil was much larger than my right, which can be a sign of stroke or aneurysm. They did a CT of my brain and it’s clear. My BP was very high. I have also had a hard time sleeping. I don’t feel tired and when I try to sleep, I feel restless. I have reached out to my Infectious disease physician at National Jewish and have not received a call back. I’m wondering if my high blood pressure is because of the inflammation. Also, what’s the deal with my left eye? It feels irritated all the time. I saw an optometrist and he couldn’t see anything. I can’t seem to get any answers and I’m very frustrated.
Has anyone had wedge resection to remove diseased part of lung where bronchiectasis is localized. I've had MAC 4 times and surgery is being suggested. I'm 72 and concerned about risks vs benefits and am curious how you fared, what healing time was and if symptoms of cough and shortness of breath improved drastically.
Hello! While many of us are safely inside during today’s blizzard in the northeast , there are extraordinary healthcare workers showing up—again and again—through the snow, the wind, and the long and challenging hours. I was stuck at a hospital for 3 days during a blizzard, while working as a nurse many years ago. To the nurses, respiratory therapists, physicians, techs, and support staff caring for patients with bronchiectasis and NTM… thank you. Your dedication ensures treatments continue, airways stay clear, and patients feel supported—even on the toughest days. If you’re a patient or caregiver, take a moment in a few days to send a message of gratitude to your healthcare provider who is working- It matters more than you know.Stay safe. Stay warm. 💙
While many of us are safely inside during today’s blizzard, there are extraordinary healthcare workers showing up—again and again—through the snow, the wind, and the long and challenging hours. I was stuck at a hospital for 3 days during a blizzard, while working as a nurse many years ago. To the nurses, respiratory therapists, physicians, techs, and support staff caring for patients with bronchiectasis and NTM… thank you. Your dedication ensures treatments continue, airways stay clear, and patients feel supported—even on the toughest days. If you’re a patient or caregiver, take a moment in a few days to send a message of gratitude to your healthcare provider who is working- It matters more than you know.Stay safe. Stay warm. 💙
Asking if certain states are better for living with Bronchiectasis in the lungs. I live in Maine and cold weather triggers minor to major flares.
Hello! Are you a caregiver? There are support Groups- online
and in-person support groups provide a platform for caregivers to connect with
others facing similar challenges. These groups allow for sharing experiences, advice,
and emotional support. The link below includes information about our BNTM 360
Social Monthly Coffee Breaks, NTMir link for in-person local support groups,
and information about support through the BNTM Care Center Network:
https://www.bronchiectasisandntminitiative.org/Learn-More/Educational-Materials-Resources/NTM-Support-Groups
Educational Resources- this site, Bronchiectasis and NTM offer
educational materials in the menu above on the right-hand.
I have been a BNTM patient, a nurse, and a BNTM patient
advocate for a long time. I have firsthand experience as a caregiver of a
family member who has metastatic cancer for many years. I have witnessed a lot throughout
the years, and I realize how challenging caregiving can be at times. Please do
find some ways to take care of yourself as well. Too often, people ask about
the patient but fail to ask how the caregiver is doing emotionally and
physically. We are here to support you and to check in to see how you are
doing. If you are seeking assistance, please email us at contactus@bronchandntm.org or call
(833) 411-5864.
Support Groups- Online and in-person support groups provide
a platform for caregivers to connect with others facing similar challenges.
These groups allow for sharing experiences, advice, and emotional support. The
link below includes information about our BNTM 360 Social Monthly Coffee
Breaks, NTMir link for in-person local support groups, and information about
support through the BNTM Care Center Network: https://www.bronchiectasisandntminitiative.org/Learn-More/Educational-Materials-Resources/NTM-Support-Groups
Educational Resources- this site, Bronchiectasis and NTM offer
educational materials in the menu above on the right-hand.
I have been a BNTM patient, a nurse, and a BNTM patient
advocate for a long time. I have firsthand experience as a caregiver of a
family member who has metastatic cancer for many years. I have witnessed a lot throughout
the years, and I realize how challenging caregiving can be at times. Please do
find some ways to take care of yourself as well. Too often, people ask about
the patient but fail to ask how the caregiver is doing emotionally and
physically. We are here to support you and to check in to see how you are
doing. If you are seeking assistance, please email us at contactus@bronchandntm.org or call
(833) 411-5864.
Caregiver support for patients with bronchiectasis is essential for
managing these complex conditions. Caregivers play a crucial role in helping
patients navigate their treatment and daily challenges.
Support Groups- Online and in-person support groups provide a
platform for caregivers to connect with others facing similar challenges. These
groups allow for sharing experiences,
advice, and emotional
support. The link below includes information about our BNTM 360 Social Monthly
Coffee Breaks, NTMir link for in-person local support groups, and information
about support through the BNTM Care Center Network: https://www.bronchiectasisandntminitiative.org/Learn-More/Educational-Materials-Resources/NTM-Support-Groups. Educational Resources- this site, Bronchiectasis and NTM offer educational materials
in the menu above on the right-hand. I have been a BNTM patient, a
nurse, and a BNTM patient advocate for a long time. I have firsthand
experience as a caregiver of a family member who has metastatic cancer for many
years. BNTM is frequently a misunderstood, invisible disorder. BNTM patients face a wide range of issues- some
patients have minimal impact, while others are greatly affected. I have
witnessed a lot throughout the years, and I realize how challenging caregiving
can be at times. Please do find some ways to take care of yourself as well. Too
often, people ask about the patient but fail to ask how the caregiver is doing
emotionally and physically. Be mindful of your own health; do not ignore your
own well-being. Caregivers fare better with support; none of us are alone on an
island, nor should exist as a solo caretaker. We are here to support you and
to check in to see how you are doing. If you are seeking assistance, please
email us at contactus@bronchandntm.org
or call us at 833-411-5864.
🌿 Good Morning & Happy Sunday
Good morning, Bronch and NTM 360social 💙
For many areas, today may bring snow—or even blizzard conditions. If that’s you, this is a gentle reminder that it’s okay to slow things down and stay safe.
Changing plans to protect your breathing, your energy, and your well-being is not something to feel guilty about—it’s taking care of yourself.
Whether today means staying warm inside, adjusting plans, or simply taking things one breath at a time, that choice matters.
✨ What’s one small thing you’re doing today to take care of yourself?
NTM Info and Research will be hosting their 2026 NTM & Bronchiectasis Patient Conference on May 13 and 14 in Orlando, Florida. You can join the conference virtually or in-person. Registration is now open for this amazing opportunity to learn from experts and connect with other patients and caregivers. Explore new clinical trials, learn about the latest advances in treatments, and take advantage of additional support opportunities. Stay tuned for more details but sign up now - space is limited!
Hotel accommodations may be reserved within the official room block.
To register, go to: https://na.eventscloud.com/website/92695/
Caregiver support for bronchiectasis and NTM patients is essential for
managing these complex conditions. Caregivers play a crucial role in helping patients
navigate their treatment and daily challenges.
Support Groups- Online and
in-person support groups provide a platform for caregivers to connect with
others facing similar challenges. These groups allow for sharing experiences,
advice, and emotional support.
The link below includes information about our BNTM 360 Social Monthly Coffee
Breaks, NTMir link for in person local support
groups, and information about support through the BNTM Care Center Network: https://www.bronchiectasisandntminitiative.org/Learn-More/Educational-Materials-Resources/NTM-Support-Groups
Educational
Resources- this site, Bronchiectasis and NTM offers educational
materials in the menu above on the right hand side
Pulmonary
Rehabilitation Programs- Engaging in pulmonary rehabilitation can
benefit both patients and caregivers. These programs include exercise,
education, and support from these professionals.
I
have firsthand experience as a caregiver of a family member who has metastatic
cancer for many years. I have been a BNTM patient, a nurse, and a BNTM patient
advocate for a long time. I have witnessed a lot over the years, and I realize
how challenging caregiving can be at times. Please do find some ways to take
care of yourself as well. Too often, people ask about the patient but fail to ask how the caregiver is doing emotionally and physically. We are here
to support you and to check in to see how you are doing. If you are seeking
assistance, please email us at contactus@bronchandntm.org
or call (833) 411-5864
It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.
Community posts are monitored by the 360social Community Manager, as well as staff respiratory therapists, educators, and other medical professionals.